Please sign our petition if you haven’t already

[Wendy39]

change.org/p/secretary-of-s...

1530 signatures but we need more!

Please sign and encourage your family, friends, work colleagues etc to sign and share too.

Thank you!!!

Wendy xx. 💜💜💜

[AgedCrone]

Have you/ can you send a copy to NICE...their email is on their website....sorry I don't have it to hand.

Maybe a spot of advice from them to NHS Wales would wake things up?

AC

[Wendy39 in reply to AgedCrone]

Thank you for the tip. I have contacted the British Society for Rheumatology and they are investigating further. I am not 100% sure of NICE remit, other than dealing with what medication can be prescribed on the NHS. I will look into it further. Wendy x

[AgedCrone in reply to Wendy39]

I looked it up Wendy & their remit includes NHS England and Wales.

Can't do any harm to send your petition to the CEO.

The more noise you make the more chance someone who has some clout will get involved.

When I mention the situation in Wales re Lupus treatment, to people here in England, they cannot believe such a situation exist in the UK in the 21st Century.

[Wendy39 in reply to AgedCrone]

I know, it's 2018 for goodness sake!!!!!!

I have now emailed them.

Wendy x

[AgedCrone in reply to Wendy39]

Good on you..she who shouts loudest gets results!

It only needs one good guy/gal to run with this to get things moving.