Please sign this petition - Help support people living with lupus in Wales get access to specialist care.

[Paul_Howard]

Please help us support people living with lupus in Wales by signing this petition started by the Pembrokeshire Lupus Group.

We are calling on the Welsh Government to allow people living with lupus and other complex autoimmune conditions to be referred for specialist care, something that is often not happening at present.

You can sign at;

change.org/p/secretary-of-s...

[Wendy39]

Thank you so much for your help and support Paul. I’m really grateful to you and everyone at Lupus UK.

Let’s hope we can make a difference here.

Wendy

[Dalilatm]

So glad to hear about this!!!!! We need better lupus care in Wales. Crossing my fingers!

Thanks for sharing this info!

[Wendy39 in reply to Dalilatm]

Thank you. Please encourage your family and friends to support us too. X

[Dalilatm in reply to Wendy39]

Yes! I live in Cardiff and I fully identify with this petition. It's wonderful that you've come up with this xxx

[Wendy39 in reply to Dalilatm]

Thank you so much. X

[Serser]

Signed and shared far and wide! Let’s hope things improve for us in Wales-we need to invest in our futures!!

[Wendy39 in reply to Serser]

Brilliant! I really hope everyone here will sign and encourage their friends and family to support us too. It’s not just for us in Wales, but hopefully will raise a little awareness everywhere it’s seen. X

[Hidden]

Dunnit! 🤞🏽

[Wendy39 in reply to Hidden]

Wonderful! Share with your friends and family too. X

[maggielee]

Wow thanks for the support.... All help greatly appreciated 🙏👏👏👏👏ml

[Wendy39 in reply to maggielee]

Hello. You, your husband, daughter, other family members? I’m expecting at least 50 signatures from you lot alone! 🤣🤣 Seriously, hoping we can get a good number on this. 🤞🤞🤞 xx

[Milliecox]

A very important matter - specialist care reduces long-term problems and improves quality of life immediately - it is safer

[Wendy39 in reply to Milliecox]

Thank you for your support. X

[Anniemack1]

All signed and shared with everyone on my WhatsApp address.

Fingers crossed for you x

[Wendy39 in reply to Anniemack1]

Thank you so much! That’s a great help. I think with this little known illness, it’s up to us, our families and friends with this - joe public don’t understand and so probably won’t sign.

🤞

Wendy x

[Fennella02]

All done 👍👍👍

[Wendy39 in reply to Fennella02]

Thank you! x

[soootired]

Signed! 😊

[Wendy39 in reply to soootired]

👍

[Wishie]

Signed and shared too, hope you get listened too x

[Wendy39 in reply to Wishie]

Thank you!

[driven]

Really delighted to see this. Hope it makes a difference. It would really help me for sure!

[Wendy39 in reply to driven]

Hello driven

So pleased you found our petition here.

Please encourage your friends and family to sign and share it too.

We need as many signatures as possible.

I have my AM and MP helping me with this, as well as everyone at LUPUS UK.

I really hope we can make some changes for people with lupus in Wales.

Best wishes

Wendy

[driven in reply to Wendy39]

I hope so too! Best of luck.

Helen

[Robin1974]

Paul we need help with our teeth I have Ehlers-Danlos periodontitis but The Hospital in the UK for members is utterly useless if your local authority says no to their request then you get a stupid letter back! Guy's confirmed my type and my Consultant at Guy's told me this yesterday.

[Robin1974 in reply to Robin1974]

Paul someone was asking about nosebleeds yes epistaxis is common in Lupus in children

[Paul_Howard Partner LUPUS UK in reply to Robin1974]

I'm sorry but I am not clear on what exactly the problem is. Are you experiencing difficulty getting a referral for specialist treatment for your Periodontal Ehlers-Danlos? Have you contacted Ehlers-Danlos Support UK to see if they are able to offer any support or guidance? ehlers-danlos.org/

[Robin1974]

Definitely we have a very sick lady in Wales

[Wendy39 in reply to Robin1974]

Do you live in Wales Robin1974?

[Wendy39 in reply to Robin1974]

Robin1974, did you see Paul's reply above? And did you contact the Ehlers-Danlos Support UK for help?

Wendy

[Hidden]

I've signed, as all those who suffer from Lupus should be treated equally

[Wendy39 in reply to Hidden]

Thank you very much for your support.