Please sign this petition - Help support people l... - LUPUS UK

LUPUS UK
26,527 members22,463 posts

Please sign this petition - Help support people living with lupus in Wales get access to specialist care.

Paul_Howard
Paul_HowardAdministrator

Please help us support people living with lupus in Wales by signing this petition started by the Pembrokeshire Lupus Group.

We are calling on the Welsh Government to allow people living with lupus and other complex autoimmune conditions to be referred for specialist care, something that is often not happening at present.

You can sign at;

change.org/p/secretary-of-s...

32 Replies
oldestnewest

Thank you so much for your help and support Paul. I’m really grateful to you and everyone at Lupus UK.

Let’s hope we can make a difference here.

Wendy

So glad to hear about this!!!!! We need better lupus care in Wales. Crossing my fingers!

Thanks for sharing this info!

Wendy39
Wendy39 in reply to Dalilatm

Thank you. Please encourage your family and friends to support us too. X

Dalilatm
Dalilatm in reply to Wendy39

Yes! I live in Cardiff and I fully identify with this petition. It's wonderful that you've come up with this xxx

Wendy39
Wendy39 in reply to Dalilatm

Thank you so much. X

Signed and shared far and wide! Let’s hope things improve for us in Wales-we need to invest in our futures!!

Wendy39
Wendy39 in reply to Serser

Brilliant! I really hope everyone here will sign and encourage their friends and family to support us too. It’s not just for us in Wales, but hopefully will raise a little awareness everywhere it’s seen. X

Hidden
Hidden

Dunnit! 🤞🏽

Wendy39
Wendy39 in reply to Hidden

Wonderful! Share with your friends and family too. X

Wow thanks for the support.... All help greatly appreciated 🙏👏👏👏👏ml

Wendy39
Wendy39 in reply to maggielee

Hello. You, your husband, daughter, other family members? I’m expecting at least 50 signatures from you lot alone! 🤣🤣 Seriously, hoping we can get a good number on this. 🤞🤞🤞 xx

A very important matter - specialist care reduces long-term problems and improves quality of life immediately - it is safer

Wendy39
Wendy39 in reply to Milliecox

Thank you for your support. X

All signed and shared with everyone on my WhatsApp address.

Fingers crossed for you x

Wendy39
Wendy39 in reply to Anniemack1

Thank you so much! That’s a great help. I think with this little known illness, it’s up to us, our families and friends with this - joe public don’t understand and so probably won’t sign.

🤞

Wendy x

All done 👍👍👍

Wendy39
Wendy39 in reply to Fennella02

Thank you! x

Signed! 😊

Wendy39
Wendy39 in reply to soootired

👍

Signed and shared too, hope you get listened too x

Wendy39
Wendy39 in reply to Wishie

Thank you!

Really delighted to see this. Hope it makes a difference. It would really help me for sure!

Wendy39
Wendy39 in reply to driven

Hello driven

So pleased you found our petition here.

Please encourage your friends and family to sign and share it too.

We need as many signatures as possible.

I have my AM and MP helping me with this, as well as everyone at LUPUS UK.

I really hope we can make some changes for people with lupus in Wales.

Best wishes

Wendy

driven
driven in reply to Wendy39

I hope so too! Best of luck.

Helen

Paul we need help with our teeth I have Ehlers-Danlos periodontitis but The Hospital in the UK for members is utterly useless if your local authority says no to their request then you get a stupid letter back! Guy's confirmed my type and my Consultant at Guy's told me this yesterday.

Robin1974
Robin1974 in reply to Robin1974

Paul someone was asking about nosebleeds yes epistaxis is common in Lupus in children

Paul_Howard
Paul_HowardAdministrator in reply to Robin1974

I'm sorry but I am not clear on what exactly the problem is. Are you experiencing difficulty getting a referral for specialist treatment for your Periodontal Ehlers-Danlos? Have you contacted Ehlers-Danlos Support UK to see if they are able to offer any support or guidance? ehlers-danlos.org/

Definitely we have a very sick lady in Wales

Wendy39
Wendy39 in reply to Robin1974

Do you live in Wales Robin1974?

Wendy39
Wendy39 in reply to Robin1974

Robin1974, did you see Paul's reply above? And did you contact the Ehlers-Danlos Support UK for help?

Wendy

Hidden
Hidden

I've signed, as all those who suffer from Lupus should be treated equally

Wendy39
Wendy39 in reply to Hidden

Thank you very much for your support.

You may also like...