I can't stand the pain anymore.

[kfmeme]

I am so new at this I don't know how to get around on here. I need to know if Lupus really presents a feeling of picking and burning like fire ants biting and exhibits bite like rash... when it comes out it looks like a mark that has a scab.

[Wadekirstyn10]

I've had that a few time's, usually in summer. It's different to my usual rash/symptoms, but I've been told by my consultant that it's a part of my Lupus manifesting in different way's.

[whisperit]

Hello kfmeme,

The simple answer to your question might be that yes, lupus/SLE could present with painful/burning skin or rashes as the main symptom. But there are many other conditions that could, too, and many other ways lupus could present.

In your profile, you say that you have tested positive for lupus only very recently, but have had investigations and treatments for some time. What have your clinicians suggested as a cause to date? Have they proposed any useful approaches based on those suggestions? Is there anything that LUK forum members could help with or suggest? x

[kfmeme]

I am currently doctoring with a specialist for the past 10 months. I have been treated with Ivermectin and steroid creams along with internal steroids. He thought maybe it was a parasite. No one else in the family has this issue. I have cleaned and recleaned everything. I have this rash or sores that will not heal. I fell Last august and to this day it is not healed. I am beside myself. on top of all of this.... my feet have broken out in sores that split open. The doctor feels it is psoriasis .

[Supul]

Hi kfmeme

I am diagnosed autoimmune hypothyroidism, sjogrens syndrome, ?lupus.

I suffer those symptoms, (and many more), especially in the summer. (In the winter I get chilblains. The burning, prickling sensation on my feet and lower legs does wake me sometimes. At such times, I know I'm going to experience a flare up. Joints ache, sores open on my feet and fingers, migraines, muscle weakness, utter fatigue, usually an infection sinus etc..

I would urge you to get a dermatologist appointment. If you do have psoriasis I believe hydroxychloriquine can help because amongst other symptoms, hydroxychloriquine helps with skin issues too.

I have many skin issues since I got AI symptoms. My dermatologist has prescribed lotions n potions and for most of the time I can manage my skin fairly well.

Flare ups? Oh, they are a different thing altogether! Lol. Flare ups really get me down!

Wishing you well.

[kfmeme in reply to Supul]

I thank you so much for your reply... I am seeing a skin specialist.... I have to tell you … I am so hoping I don't have to go through this for not even one more day.... this is horrible. Thank God I have my grandbaby I have to raise.... I am just saying... this is horrible

[Supul]

Bless you. I know, it is horrible!

Most of us on this site will never forget how awful such experiences were, (are), especially when we had no notion of what was causing what symptom. Of course, these autoimmune disease, keep reminding us, lest we forget, by having another symptom, and/or a flare up pop up.

On this site you will learn so much about your condition. Reading and keeping abreast of latest research is helpful. The more you learn and understand, the sooner you will be able to recognise symptoms and where possible, avoid triggers, such as sunshine on bare skin. The dermatologist should be helpful in terms of teaching you how to manage your skin.

The group here are so wonderful. Sharing knowledge and experience, allowing, and understanding when we want to vent etc. Yes, its very very hard for you, right now. And, there will be hard days to bear. But, please know, you will never be alone.

HU is available 24/7 it would be very rare that someone would not respond to you and also that someone will have had a very similar experience, on which you can draw coping skills. Or just share and offload some pain.

Thinking of you. Your little grand baby must be a real tonic. I know my grandchildren help me overcome bad days...

[kfmeme in reply to Supul]

Thank you . She is amazing. I know God has a plan. It is very difficult... I am trying to think positive and trying to wrap my head around this ….

[Bakbre]

Hi there

I have this "fire ant" feeling constantly in both my thighs and the tops of my legs. It is like a burning and pins and needles all in one and very painful. My consultant just said that it was probably nerves and nothing could be done - she said I should just take Vitamin B complex!

Anyway to cut a long story short my own GP who is really nice sent me for some tests and it was found that I had Small Fibre Neuropathy. This can be part of our conditions. It is the nerve endings sending signals to the brain that the affected area is hurt and needs help (even though it doesn't). There is unfortunately no cure but there are tablets you can be given that can take away some of the pain and make it more bearable. I suggest you go to your GP and explain to him.

Good luck

[DJK99 in reply to Bakbre]

Hi Bakbre and kfmeme - can your GP send you for those tests? Or do you need to ask your Rheumy to? I have these symptoms ( in feet, hands and as I sit here off sick today also my arms and legs) and discussed with my very busy indeed rheumy last review last month but no tests, just see him again in Jan. I've had the major test for neuropathy but he did say the small fibre might be useful. I'd like not to have these symptoms.. along with all the others! Be good to get rid of some of it... All the best to you,D