I've had the crappiest morning,
letters have come from QEBH. CONFUSED.com !
Prof Harper's response is completely different in this letter to what She told me in person..
I won't write the whole thing but she states:
In summary presently there is no objective evidence to support a diagnosis of a systemic disease beyond the ANA.
(So no Vasculitis & now no SLE) !
I am beside myself.. it's a good thing to not have it, but after all these years I thought I had a name to my illness! & a reason for all the suffering !
She told me that my ANA AntiDS DNA & Anticardiolipin were all positive & indicated towards lupus since the beginning, she discharged me back to my GP, with a lupus diagnosis & wanted me to start Hydroxychloroquine.
It says I suggest a trial of hydroxychloroquine may still be beneficial to see if this improves her multiple Symptoms. Which I am happy with.,? Umm If I haven't got a AI why give me the treatment..?
It annoys the hell out of me that I thought I found someone who understood me, A 14 year battle to get a definite diagnosis is just not gunna happen! i am back at square one & to be honest I WANT to give up now. I've had enough!
My life depends on Thursdays appointment with the private Gastroenterologist.
I don't know what to say.. 😞