New - SLE and coping: Imagine that you have to do... - LUPUS UK

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New - SLE and coping

IWTGO profile image
7 Replies

Imagine that you have to do some real hard work, physical or mental, for a long period of time. Several days. Months. You can maximum sleep 8 hours per 24 hours, and you have to work most of your awake moment. You also have lupus or another condition with similar symptoms, with severe fatigue and brain fog. How do you get your work done best way possible?

Basically what I'm asking is... how to survive high intensity work with lupus? What adaptions can we make?

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IWTGO profile image
IWTGO
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7 Replies
Jennifer251 profile image
Jennifer251

it's actually hard for people with lupus to face with high intensity work because overdoing triggers lupus flares. But, you can improve your overall health to deal with lupus symptoms. Lifestyle changes and good diet may help you deal with lupus. The following tips are things I've done:

- Listen to my body. I take rest whenever i feel tired as i know i can't work best with fatigue. Take rest for 10 minutes, and begin to work later. So, no one can understand your condiiton clearly, except yourself. When you're too tired, try to take rest within 5- 10'. In case your work is high intensity, choose the ideal time to solve it. Consider good time for your work and use it to deal with priority tasks. Besides, time management is important to reduce fatigue. You should set up a frame work and other daily activities: when you work, take rest, solve important tasks or when you meet your customers, etc

- Control stress. Stress is a big triiger of lupus. Try to spend time for yourself, hang out with your fiends and relax. Also, you can take deep breath or do yoga to reduce stress. Though you're very busy, remember to take rest

- Eat healthy foods. Fast foods, fried foods and packaged foods may trigger your symptoms. Instead, you should add leafy green vegetables, fruits, lean meat and fish to your diet

- Exercise. It may be hard at first, but it helps improve your health later. Yoga, Tai Chi, aqua therapy or jogging are good for your health. You can consult with your physical therapist to deal choose the suitable one. After a long time, I find out Tai Chi is the best exercise for me.

- Take supplements. Some supplements aren't good for people with lupus, but others may help improve your health. You can consider vitamin C, vitamin B12 complex or Lupufree for improving your health.

- Take note. To deal with memory trouble, I start to take note. So, there's always a notebook in my hand bag. I also use cell phone to write down important information

I just share with you my experience, Hope this is useful for you.

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi IWTGO,

Welcome to the LUPUS UK HealthUnlocked Community.

Stress, anxiety and fatigue are a few examples of the causes of brain fog in people with lupus. We published a blog article discussing ways in which you can organise and manage tasks and activities better, to read this article please click here lupusuk.org.uk/coping-with-...

Stress is an important trigger of lupus, we published an article on our blog about stress management and relaxation which I hope you find useful: lupusuk.org.uk/stress-manag...

To read our blog article on 'managing fatigue', click here: lupusuk.org.uk/managing-fat...

If you need information about lupus and employment, including information about your rights and what support services are available, we have two booklets that you can read and download at lupusuk.org.uk/working-with.... If you need physical copies sent to you, please email me at chanpreet@lupusuk.org.uk with your name and address.

Please keep us updated, wishing you all the best.

Ericanemec profile image
Ericanemec in reply toChanpreet_Walia

These are not the only reasons and definitely not mine.

So unfortunate.Lupus can and will affect the brain so keep the inflammation down because this info on this forum is so outdated and generic.

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK in reply toEricanemec

Hi Ericanemec,

As mentioned above, stress, anxiety and fatigue are just some of the causes of brain fog but certainly not all. Lupus affects each individual differently and it is rare to find two people who will share the exact same experience.

We are not medically trained here but we try our at most best to provide information and links which can help those who may need it :)

IWTGO profile image
IWTGO

Thank you both for replying :)

Ericanemec profile image
Ericanemec

I work. Get your Lupus in check and it won't be a problem. I've had it half my life and it is something you will get used to.

IWTGO profile image
IWTGO in reply toEricanemec

That's good news :) Do you manage to avoid flares during work with high intensity?

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