Sorry for the late reply everyone. I haven’t been very well..
I’ve been eager to let you all know that I finally have a DIAGNOSIS! (Tummy)
👉🏻chronic Intestinal Dysmotility Disorder👈🏻
My CT scan revealed fecal impaction of the colon.
I also have malabsorption syndrome.
I’ve been referred to a expert dietitian. & a multidisciplinary team, pain management too + 🤩 a neurologist , due to numbness strange sensations etc. I’m struggling with my Nerves literally!
I expressed that I feel ok if I don’t eat. But food is a must. My dad had noticed that I would be pain free to some extent when I don’t eat anything, which concerned him, & sometimes I can go days without eating at all, no appetite what so ever. which then causes more problems like severe painful constipation. Distension, Intestinal contractions.
if I do eat I have waves of pain with loud growling which has an electric shock effect.
I’ve been severely struggling with what different foods to try, The only thing I can tolerate is mash potato & gravy. If I push the boat out just a little.. I may have a few veggies but I become full very quickly but doesn’t sit well if I add new things. Plain Jane.
my consultant strongly suggested that I must without fail try my very best to eat more than just a few spoonfuls a day. Which I’m doing slowly. It’s all Trial & error.
So with this dieticians help I can find a healthy balance. Before all this started I used to love my food! A normal plate didn’t seem enough back then but now it’s a giants portion. I want to be able to enjoy a meal again, enjoy going out with the family, I miss being able to just simply eat. But I’m sure as time goes by & with the right help from the right people I can learn to love food again 😘 positive thinking.
If all else fails I will have to have an IV fitted in hospital, feeding tubes etc.
But I’m DETERMINED & WILLING to eat, no matter how hard it’s going to be!
We discussed a colonoscopy which was cancelled previously due to my deteriorating state. But I’ve agreed to go ahead for completeness. (To be arranged) he’s chasing up rheumatologist appointment & Cardiology.
Mr Shaw is absolutely fantastic!
I feel like I’m in the light at the end of the tunnel!
No IBS no infection or virus has caused this gut damage & Intestinal Disorder.
Apart from suffering with excessive acid reflux & GORD for many years he confirmed that it was the Scotch Bonnet Chilli Meal that has caused this chronic debilitating condition
My partner surprised me last year with a romantic night in, Turns out the real surprise was the chilli. He was aware of my gastric reflux & not being able to consume spicy foods, a MILD curry would cause havoc. But still he put the whole chilli & SEEDS in anyway.. he didn’t tell me until I was unable to swallow, sweating, choking & nearly passing out!!
Jeez if only I could go back in time, I wouldn’t of eaten it, I surely wouldn’t be like I am now.. suffering.
Yes I am a bit bitter, but I’m the one that has to endure it. It’s crazy how a chilli can destroy your insides, something innocent became insidious.. It seems so unfair. Slap me- need to be positive... ha
But I am incredibly grateful to finally have a diagnosis!
One down a few more to go....
Next on the list is my Auto immune I have won this battle.. 🤞🏻🙏🏼 I will not loose this war