LUPUS UK
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Ironic investigation outcome!

So... following lumbar punctures (yes plural, I’ve apparently also got a wonky spine) I’ve now got post Dural migraines. Which is ironic seeing as the LPs were to find out what was causing my headaches. Typical. LPs seemed to have triggered my symptoms again- tinnitus, spasms, tremor, eye sight. Currently on total bed rest. At least I get a neurologist referral as well as the rheumy. Bored and desperate to get back to work.

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Ach I can relate to all you’re suffering including lumbar puncture probs caused by wonky spine and your symptoms. Good luck with neurologist - mine has proved useless and I just get bounced between neuro and rheum over my neuro symptoms. X

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I feel a lot of bouncing coming my way!

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Just take it easy one thing about this illness is you definitely need to rest when u can

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Tell me about it, though paradoxically I can’t sleep! Burning feet.

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