Ironic investigation outcome!: So... following... - LUPUS UK

LUPUS UK

31,716 members28,083 posts

Ironic investigation outcome!

MsAndyIvy profile image
4 Replies

So... following lumbar punctures (yes plural, I’ve apparently also got a wonky spine) I’ve now got post Dural migraines. Which is ironic seeing as the LPs were to find out what was causing my headaches. Typical. LPs seemed to have triggered my symptoms again- tinnitus, spasms, tremor, eye sight. Currently on total bed rest. At least I get a neurologist referral as well as the rheumy. Bored and desperate to get back to work.

Written by
MsAndyIvy profile image
MsAndyIvy
To view profiles and participate in discussions please or .
Read more about...
4 Replies

Ach I can relate to all you’re suffering including lumbar puncture probs caused by wonky spine and your symptoms. Good luck with neurologist - mine has proved useless and I just get bounced between neuro and rheum over my neuro symptoms. X

MsAndyIvy profile image
MsAndyIvy in reply to

I feel a lot of bouncing coming my way!

Curly1430 profile image
Curly1430

Just take it easy one thing about this illness is you definitely need to rest when u can

MsAndyIvy profile image
MsAndyIvy

Tell me about it, though paradoxically I can’t sleep! Burning feet.

You may also like...

Outcome of Expedited Appointment

sternly if I had SP50 on my face at the moment (yes). Some muttering from her about lupus. I...

the outcome of cyclophosphomide

cyclophosphomide treatment can you tell me if you got better after the six months treatment.

MS investigations commencing in the new year

Hey, I’ve had some weird new symptoms over the last week that I can’t explain. I’ve not forgotten

Dealing with family/friends/general life whilst investigations are pending - Please help!

connective tissue disorder. I'm still awaiting my referral to a specialist. Recently it appears I...

Raynaud's Dr.'s Appt. Outcome Am I Expecting Too Much

maybe it is just me. I have considered trying a new rheumy that is connected to my GP's hospital....