Hello all! This is my first post and I'm glad I found this forum as it looks like everyone is so kind and helpful. I've been sick for over 10 years with so many different things including severe migraines, nausea, vomiting, arthritis, other types of joint pain, muscle pain, other types of headaches, severe memory loss (short-term), sexual disfunction, sensitivity to the sun, skin discoloration on my face from the sun, heat rash (at least I thought it was that until I looked it up & it looks a bit different), red rash on my face that comes and goes, joint stiffness... especially in my hands, lower back pain, full-body tingling sensations, lack of coordination, running into things, anemia (but not sure if it's from lack of protein in my diet so I'm working on it) & fatigue. I also just tested positive for a a D-dimer test which sent me straight to the ER for hours of testing for blood clots in my lungs and heart which all came out negative. I looked it up to see if it could be related to Lupus and it said that it was one of the most common reasons a D-dimer test would read a false positive for blood clots.
I never thought of lupus until I started getting the red rash periodically on my face then looked up the pictures of the lupus Tash then compared pictures of heat rash with them and realized that my rash didn't look like heat rash at all. I assumed that it was heat rash because I would get it when I was hot.
My main question to any of you us that I want to know if you ever experience full-body tingling? It's accompanied with nausea & sometimes vomitting which can be mild or extreme and you basically feel just completely in-operable from head-to-toe! The way that I explained it to my doctor back in Cali was that when these episodes come on, I feel as if someone has poisoned me. I don't know how else to explain it. My episodes can last for as short as 4 hours or as long as 4 days. I spent this last Christmas for 3 straight days having an episode and couldn't leave my home. My new doctor is more concerned about saving the hospital money than saving lives so here I am asking for your help. I will say that stress definitely plays a part in bringing on my episodes and I'm currently taking Topomax for migraine prevention which helps with that part but but my old doctor says all he could think was that I must be having silent migraines where I have all of the migraine symptoms but not the migraine. I'm just not convinced.