LUPUS UK
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About Sleep

Of course, everybody needs comfortable sleep, about 8 hours per day. My experience says that we should go to rest whenever our body and mind urges for it. But some sleeps are ill-fated. and may lead to irreversible damage. My experience says that if I feel strongly urged for sleep, so that I cannot resist it, I should do nothing but resist it! Then, after some time, that urge loses its intensity and I can go to bed and experience a refreshing sleep. As you need to sleep, sometimes you need not to sleep! That may be a signal for potential bad events that are going to happen!

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Hi Iranianman,

Could you explain what you mean by suggesting that sleeping can sometimes cause 'bad events' please? I'm unsure what you are trying to suggest and I do not want anyone within this community to be worried needlessly.

We generally advise people with lupus to listen to their body and not push themselves too hard when they are experiencing pain or in need of rest. Pacing is very important for the management of fatigue.

It is advised that people with lupus aim to get at least seven hours of sleep each night and it is important not to oversleep. If you sleep too much and spend too much time in bed then your body can become deconditioned and make fatigue worse.

You can read more about pacing and good sleeping habits in our blog article here - lupusuk.org.uk/managing-fat...

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Hi Paul

There have been many occasions that I have slept just responding to my body and mind and have woken up with much pain in a part of my body, mostly my head while there was no such pain at the moment I started sleeping. Then I thank God for making me such a favor to wake up on time! I should explain here something about my sleeping habit. I am among those people who fall asleep immediately after going to the bed and wake up just on the side they fall asleep several hours before then. However, when I am in flare of Lupus, it differs. Then I need to be more keen to my condition and don't let it worsen. Sometimes I need one half hour meditation, drinking some water or fluid, walk for a while, explore my body and where it pains, see myself in the mirror, check up my heartbeat, my respiration, my eyes, ears, etc. and then, when I feel they are OK, go to the bed again, and have a soothing sleep again. I keep to having at least 7 and at most 9 hours sleep per day.

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Oops! I forgot to say you: Happy New Year and Merry Christmas! I wish you all the best!

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Hello Iranianman

Sleep is such a curious phenomenon; yet virtually every creature on the earth sleeps, so it must be extremely important. Paul has offered some practical thoughts. I'm just going to repeat Shakespeare's words:

Weary with toil, I haste me to my bed,

The dear repose for limbs with travel tired;

But then begins a journey in my head

To work my mind, when body’s work’s expired:

For then my thoughts–from far where I abide–

Intend a zealous pilgrimage to thee,

And keep my drooping eyelids open wide,

Looking on darkness which the blind do see:

Save that my soul’s imaginary sight

Presents thy shadow to my sightless view,

Which, like a jewel hung in ghastly night,

Makes black night beauteous, and her old face new.Lo! thus, by day my limbs, by night my mind,

For thee, and for myself, no quiet find.

Sonnet 27

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Thank you very much whisperit. I enjoyed much that poem. I will read it times and again. It is refreshingly beautiful! Note that my country, Iran, too, has great poets. I will send you a translation of one of them in the future.

Thank you. Have a good time. Happy Christmas!

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hi, the poem is:

One night in the Moonlight

I dream a full Moon

which takes me, alley to alley

to the vineyard, to the plum garden

of valley to valley

to the Sahara, to the desert

down the way where on nights

behind the woods,a fairy comes

scared and shaking

puts her feet into the spring water,

combs her tangled hairs

one night in the Moonlight

I dream a full Moon

and it takes me to

the bottom of the valley

down the way where on nights

alone and solitaire

the single willow tree

happy and full of hope

extends its hand

cunningly and cutely

hoping that

a star

drips like

a drop of rain

and hangs from its branch top

instead of the fruit

one night in the Moonlight

I dream a full Moon

that brings me

out of the jail,

like a moth

takes me there

where in the dark night

until dawn, the martyrs of the town

with a bloody lantern

cry and cry

in the streets, in the squares

Uncle Yadegar, man of hatred!

are u drunk or sober?

are u asleep or awake

we are drunk and sober

martyrs of the town:

asleep and awake

martyrs of the town:

at last, a night

moon will come out

from that hilltop, that oversees the valley

in the Square

passes, laughing

one night Moon comes

By: Farhad Mehrad

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I've been off the internet or a few days, but was very glad to return and find this poem waiting! Thank you, Iranianman! Best wishes for the new year coming

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