I will try to keep this short.i have been on low dose steroids and pleq for 13 ish years for an unconfirm con tiss disorder.7 years go I was admitted and label of secondary fibro added.some how I wad sent to a diff hosp for pain management but saw consultant rheumy.discussed symptoms ect and I explained how I felt unwell since reducing steroids to 5 mg a day as per old rheumys instructions 7 months ago.i have also developed livido on legs and arms.after examining me I asked new rheumy if this was consistent with fibro and if they could help pain wise.i was floored when she said it was NT and that given my symptoms have worsened eg fatigue night sweats circulation issues and that this was on a similar timescale to steroid reduction she said NO !!!.she ordered stacks of bloods, put me on sliding scale steroids and gave me info on immuno suppressants.bloods have always been ok except chronic anemia and low ferrtin.i am back in four weeks.i am scared stiff at thought of immuno suppressants and utterly confused if what I am experiencing is a flare of sle or similar.(old rheumy said I was in remission and symptoms where fibro). She has taken over my care.i am so confused and scared.i don't want immuno suppressants as they scare me.i feel my world has been shaken
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