Umm 😐 last night I went to sleep quite late, around 4am I noticed I had a tiny rash beginning on my cheek just like a patch of redness & woke up this morning to my entire face all red & blotchy. Felt like sunburn! My eyes are sore & dripping. Any ideas ??
😊🙏🏼
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LauraMk30
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Have you spoken to your GP or rheumatologist about this?
Skin involvement is common in lupus, with 60-70% of people with lupus reporting some skin problem. Rashes can be induced by sunlight as well as other factors which are discussed in our ‘Lupus and the Skin’ guide; lupusuk.org.uk/wp-content/u...
Many people with lupus experience a flare of their symptoms when exposed to sunlight. The most common symptom is for rashes to appear on the skin, affecting areas that are frequently exposed such as the face, neck, hands and feet. We published an article on our blog about coping with light sensitivity which you may like to read here: lupusuk.org.uk/coping-with-...
Around a third of lupus patients have some sort of eye related matter such as ‘dry eyes’. We published a factsheet on ‘LUPUS: The Mouth, Nose and Eyes’ which I hope you will find useful: lupusuk.org.uk/wp-content/u...
Please let us know how you get on, wishing you all the best.
I've recently purchased a make up mirror with LED lights which give off a UV like light & that is the only thing I used prior to going to bed to check how the rash was doing it magnifies your face so I could see it clearly I didn't think much of it until this morning.
I will read what the links you've attached as I'm unsure as to why or what happened to wake up with a rash over my entire face & down my neck.
I had noticed during a shower that I had been bitten on my shoulder. Not sure by what. But it had swelled as I am allergic. It's been 2 days & I can finally rest my shoulder in bed, it was too painful for the blankets or even clothing, the slight brush of something made me cry. Which is unusual as I do have a high pain thresh hold.
I have spoken to my doctor who wasn't concerned as usual & told me to keep it clean etc. I mentioned my main concern (rash) & told me not to worry to much.
Which is a little difficult when it was literally on fire.
It's started to go down now which is a relief. My skin feels like sandpaper. Skin is normally dry so i use organic coconut oil on my t zone. But this time round anything & everything stings so I'm just leaving it to heal on its own. I did try a tiny bit of aloe Vera but even that was too much to handle.
I'm used to rashes, but this was totally different to the lesions I'm used to. I don't think I'll be using the light Mirror again. Trying to Eliminate becoming even more poorly by using the simplest of things.
I would stay away from UV as much as possible ... sunlight (both indoors and outdoors). lights/ lamps, TV or computer glare in excess..... some people complain of dentist and hospital lights. Be careful but see what type of light is worst for you.
I treat my rashes as I would deal with an open wound... actually mine seem like small tiny cuts and hurt as such.
I've never reached badly to a UV light or LED mirror. I wondered years ago when I used to hire a sunbed for a few months, & would always rash up quite badly & would have to go to bed & sleep for a while felt like I'd been hit by a freight train !! So now I sort of understand that these lights don't agree with me! I still haven't had a definite diagnosis of SLE I thought I did but I'm back to the drawing board.
Thanks for the advice I'm sorry you have to go through similar things, it's not nice & it is hard to deal with. I hope you have a good support system & lots of friends & family to keep you company & be there for you. It's a lonely place sometimes. Hugs x
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