worldautoimmunearthritisday... #WAAD17 will be putting the "AUTO" in "AUTO"immune/"AUTO"inflammatory Arthritis
in this MAJOR online social media awareness event.
race starts 20th May I will be supporting Lupus UK as my Nonprofit Race Team .... join in
Thers are full details on the WAAD site worldautoimmunearthritisday... of how to be involved
Paul_Howard or anyone else at Lupus UK ... I see that you are down as a non profit race team unfortunately the details on this page ... worldautoimmunearthritisday... seem to be incomplete for you
Hi fabwheelie ,
Unfortunately I wasn't available at the time you sent your message so I wasn't able to correct this. I have now notified the organisers so hopefully this won't happen again in future years.
OK no worries. I did wonder if you may all be out of office as WAAD happened over the weekend, but thought it worth mentioning as good to have the direct link to Lupus UK ... Links were available via other links to various things done by Lupus UK such as your booklets etc in the "events programme" on the day. I posted quite a few facebook posts and tweets during the Saturday, and Yvonne Norton who runs WMLG did facebook posts too ... Lupus UK even got a mention on the Saturday on a WAAD facebook post .... so hopefully some more awareness about Lupus UK got out there
my tweet so far
My AGE of diagnosis was 37 @Chris_Buescher is my #NASCAR driver - @Chris_Buescher plz DRIVE my post #WAAD17 for @LUPUSUK
my facebook status .... Getting ready for WAAD17 ( worldautoimmunearthritisday... "I was 37 when diagnosed with Lupus #lupus , a disease with autoimmune/autoinflammatory arthritis. Chris Buescher (@ChrisBuescher60) is my #NASCAR driver. Chris Buescher will you DRIVE MY POST forward (share) to help spread awareness that this type of arthritis is not the same as degenerative arthritis'? #WAAD17 #ArthritisHasTypes" #Lupusuk please do this for my non profit team Lupus UK
Thers are full details on the WAAD site worldautoimmunearthritisday... of how to be involved
Where to next? 
PIP
Bone marrow biopsy for chronic low wbc 
Nearly there but oesophageal muscle damage due to delays
