Pain again

[Ianrussell69]

Had a good run on the pain front but this morning every large muscle like I've been hit by a train looks like I'll be best friends with tramadol for a day or two !!

[Lilrosie1]

Omg!! Why does our body do that!! I am just getting use to all this weirdness lol

[Paul_Howard Partner LUPUS UK]

Hi Ianrussell69 ,

If you haven't seen our blog article about pain management yet, you may find some of the tips in it helpful. You can read it at lupusuk.org.uk/pain-managem...

[Lilrosie1 in reply to Paul_Howard]

I can deal with pain but has anyone had lesions I know one of you do on the back of your neck but the wire feeling is driving me crazy I scrub until It hurts and my skin comes off and idk what else to do

[Paul_Howard Partner LUPUS UK in reply to Lilrosie1]

Hi Lilrosie1 ,

Is it more of an itching that is the problem?

[Lilrosie1 in reply to Paul_Howard]

It at times itches and lately it's been feeling like an electric wire shooting I also am starting to get on the neck like a line indent idk it's hard to explain. I can hear pops coming from it maybe it's just me going crazy. My fiancé got me GRAPE SEED abstract oil from GNS and I have us d it on my neck and has reduce the lumps. I wish I knew how to upload a picture and show you. I have talked to my GP about it and he had froze them nitro and it helped alittle about two months ago. I have done a lot of research on this all I know at this time I have fever she sinus like never before I go into the sun and at the end of the day my arms are numb muscles go weak and I'm down for five days now? What do you think? Have you read about wire loop in the neck ? In 1859-1940 there 277 cases found. I can't really say how much it itches or hurts I just am more focus on how the feeling feels and how it is really making me crazy . Mentally and I'm pushing everyone away. I have not gone into remission and Paul thank you !!

[Paul_Howard Partner LUPUS UK in reply to Lilrosie1]

If itching is a problem then our blog article about coping with itching may be helpful for you - lupusuk.org.uk/coping-with-...

I'm afraid that I have not read anything about "wire loop in the neck" and when I search for it I can only find information about jewelry or hearing-aids.

[Lilrosie1 in reply to Paul_Howard]

ncbi.nlm.nih.gov/pmc/articl...

Here is an article of it, you must search under wire loop lupus in the neck it talks about the lymph nodes and different relations how some thought it to be tuberculosis and others different etc it's really interesting and the only reason I've researched it is because of the weird feeling I begun to feel.

[Lilrosie1 in reply to Lilrosie1]

I hope you find it just as interesting and useful as I have had

[Lilrosie1 in reply to Paul_Howard]

Idk Paul I think I just focus on the embarrassment of how I look and how it feels at night. It's like the nerve is shooting out and down I wish I could explain it More I'll send a link on the feeling too

[Lilrosie1]

Everyone tells tells me. Toning is there but it feels like a giant string in my neck and I pull at nothing am I just going crazy z?