My daughter has just been diagnosed with discoid lupus, so we are slowly coming to terms with all that this will entail for her.
She's 9 years old and has had skin problems and horrible rashes whenever we have visited sunny countries, we finally had our diagnosis after being bounced between dermatologist and doctors for years who have given us all manner of creams for fungal infections and anti histamines for allergic reactions.
Last week we finally got to see a doctor who told us that all the hair she has now lost is due to having discoid lupus, we have been given some steroid cream for her scalp and also some pills -prednisolone- and we have been sent away... again, we will eventually see a paediatric doctor (being referred hopefully soon) who will hopefully tell us what drugs to take, our daughter has also had some blood taken to see if she also has systemic Lupus.
My question is should I just let the nhs deal with this over time, (already been pushed around for 3 years with symptoms) or do I need to see a specialist right NOW, sooner rather than later?
Nobody in the nhs are telling us about urgency or drug use etc.
We are in the south near Brighton and any advice about the first correct steps to make would be fantastic.