I'm confused: I'm still not sure if I have lupus or... - LUPUS UK

LUPUS UK

32,238 members28,587 posts

I'm confused

5 Replies

I'm still not sure if I have lupus or not because I still haven't gotten results back. I only have a positive ANA of 1:40... my hair has been falling since July 2015, now I'm noticing eye brow loss too. But when my hair started falling in July up until now I had ZER0 other symptoms... just now I started noticing a mild rash on my chest, mild aches and pains, fatigue... that's it. But why didn't I have this when my hair was just starting to fall out? I don't get it.

Another question... when you have lupus do cuts and other wounds not scab or take longer to scab??

Notice the mild irritation on my chest? Not too bad... does it get worse though??

Read more about...
5 Replies
Cas70 profile image
Cas70

I'm afraid it does slowly creep up on you. Do you have dry eyes and mouth? There are so many immune problems that are linked. I had constant shingles and dry eyes, mouth etc plus wounds that wouldn't heal. It sounds like your immune system is "down" that is how I think of it. Keep pushing for treatment - it can take ages. Don't get low - Lupus uk will advise you well. Good luck

Wildcats85 profile image
Wildcats85

I know that it is frustrating. I can't tell you how many yrs of test and being ill I had to endure until I finally got diagnosed with fibromyalgia. Then about 3 yrs later I was diagnosed with the AS arthritis. It seems like doctors are afraid to diagnose someone with an autoimmune disease. You get a point where you don't even care what they can it, you just want the help to feel better. I know that it takes forever for me to heal for anything. A sinus infection or a cat scratch. I am on Embrel injections which contributes to that. But I think that any autoimmune disorder affects that. It is a very hard journey and all you want to do is find out what is wrong with you and how can I get better.

in reply toWildcats85

May I ask? What was you're ANA number and pattern?

Wildcats85 profile image
Wildcats85

Have you had a thyroid panel done? It would be a TSH, T3, T4. Those are a lot of symptoms for thyroid issues. It is worth researching.

ShootingStars profile image
ShootingStars in reply toWildcats85

Definitely. Outer 1/3 eye brow loss, hair loss can be classic thyroid disease symptoms. Most specifically, the tests are: FT3, FT4, not Total T3 or Total T4. The "free" tests are the right ones. Also, the symptoms could be autoimmune thyroid related, so thyroid antibodies should be tested, TPO and TG. ANA can be negative or positive even if you have autoimmune thyroid disease, like Hashimoto's, or with other autoimmune diseases.

Not what you're looking for?

You may also like...

Have I got Lupus or not???? ...anyone able to listen or advise???

Maaaannnn.... it's driving me crazy.... I was suffering chest pains and went to the hospital for a...
Paul_Heanor profile image

Confused!

Hello everyone :) I'm new here, lots of questions! I had a punch biopsy that confirmed subacute...
Anyac81 profile image

Hair loss!

I have struggled with hair loss for years since my Lupus diagnosis, but managed to grow it back...
Pipido36 profile image

Hair loss STILL!

Hi All, I have been treated with plaquenil for 6 months now and been on imuran and 5mg prednislone...
Emily00 profile image

getting perms and lupus & hair

Im just curious... I so wanna get my hair permed...i rarely do it. I was ok with meds and thyroid...
dgleds profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.