March's Topic of the Month - Pain Management - LUPUS UK

LUPUS UK

32,014 members28,333 posts

March's Topic of the Month - Pain Management

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK
6 Replies

Our blog article for March about pain management has now been published.

lupusuk.org.uk/pain-managem...

Thank you so much to everybody who submitted their tips and experiences to help us write it.

Written by
Paul_Howard profile image
Paul_Howard
Partner
To view profiles and participate in discussions please or .
6 Replies
KatieRL profile image
KatieRL

Thanks so much for sharing this article. I was told by my pain clinic that having acupuncture when you have Lupus can be damaging as it stimulates the immune system. For that reason I cannot get treatment on the NHS. I don't know if they are being over-cautious or is it something I should try for through the private sector.

bengali profile image
bengali in reply to KatieRL

I was told that anyone who has or has had (and grown out of or etc) epilepsy, cannot have acupuncture. Is this true?

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to bengali

Hi KatieRL and bengali ,

I've had a look at my usual reliable sources for information about contraindications for acupuncture and the only ones I find repeatedly are;

"If you have a bleeding disorder, such as haemophilia, or are taking anticoagulants, talk to your GP before you have acupuncture.

Acupuncture is also not usually advised if you have a metal allergy or an infection in the area where needles may be inserted."

Unfortunately there isn't a lot of high-quality evidence-based information for this therapy at the moment because it is only beginning to be recognised for it's potential clinical benefit. Therefore further studies are required. I would recommend that you follow the advice of your personal medical professionals on this matter.

bengali profile image
bengali in reply to Paul_Howard

Just curious as that's what he'd said, he was an Asian doc, so.. He'd said the way it work, affects the nerves, has been known to cause an episode, or cause a reccurence (relapse) for someone who had grown out of it. I wonder how severe your allergy to metal needs to be to rule you out? I have about half an hour in general before I break out - to all but titanium, platinum, white gold (not rose or yellow for some reason), and silver. I'd imagine the needles would be stainless steel, so anything longer than a few minutes would rule me out there.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to bengali

If you were considering it you would need to highlight that to any acupuncture therapist before having any sessions. I imagine it could prevent you from being able to have it.

bengali profile image
bengali in reply to Paul_Howard

Yeah. Unfortunately as he was quite confident there would have been a difference (had tenosynivitis from work injury). I didn't mean above tovsound racist when I said about him being Asian, he seemed an extremely competent doctor, very knowledgeable, I just mean that sometimes they have access to incredible knowledge, or experience in regards to accupnunctureor similar that it would be hard for people of other nationalities or races to get.)

I never thought about the allergy point of veiw though - and it is a very good,very valid, point. Thank you for your help.

Not what you're looking for?

You may also like...

Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….

Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis...

Lupus and Radiotherapy

Hi everyone ; I have SLE and APS and take Warfarin ; this has been my situation for around 25...

Depressing facial rashes/What do you do?

Today I feel very overwhelmed with the uglies of lupus on my face. I’ve begun a flare of my own...

Has anyone had neck gland scans to check if a dry mouth is Sjorgens?

I have an appt to go to the Dept of nuclear medicine later this month to have some kind of scan to...

Shingles Jab

I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However,...