Fatigue - the inner monologue

**Why am I so tired? Why am I so tired ALL THE TIME?

You know why you're so tired. It's called lupus and you've been bitching about it for months. So don't act like you're all surprised and ****.

**I really want to take a nap. I can barely keep my eyes open.

Don't take a nap. That's being weak. You're stronger than this.

**It's not about being strong or weak. It's about listening to and respecting what your body is telling you.

But my body is all wrong, so isn't what it's telling me wrong, too?

**I don't know. I wish I could tell you, but I don't know.

You're never going to be the person you were.

**No one ever stays "the person they were". It's called change and everybody goes through it. So stop bitching about it like you're some special snowflake.

Am I worth all the misery?

**Yes, you are. Or conversely, you're not. Either way, you're still you. So get on with it.

God, I just really, really want to lay down.

**So go lay down. Just go lay down. You picked up the house, you took out trash, you scooped out litterboxes and even managed an excursion out for groceries and coffee. You've done good today. You deserve to lay down.

Okay. Okay, I'll go lay down. Thank you for saying I deserve to rest. Sometimes I forget that.

**I know. That's why I'm here, to tell you that you that it's okay to rest.

6 Replies

Excellent. But I will have to wear a tinfoil hat in future to stop you reading my other thoughts. Mx


Love this quikytizzy

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If you scooped out litterboxes you definitely deserve a guilt-free rest! :)

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Love your fatigue post. I am constantly feeling guilty about my lack of activity! I was diagnosed in 2013 and was just in hydroxy and an iron supplement until last year. From July 2016, I have been on MMF and I think it's working now. Lupus seems to be mainly under control but I am still shattered every day! Some days I take the kids to school, go back to bed and stay there until I have to pick them up. I'm wondering if it's my iron levels or Vit D deficiency? Anyway, it's the most frustrating part of the illness for me!!!

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How can you think all that??you must have more energy that you give yourself credit for. I got tired just by reading LOL.

"I'm tired...."

... and then white noise for 2 minutes, yep that's me. LOL

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You accomplished all of that and went to the store and for coffee?!? I'd be exhausted after cleaning up the garbage & kitty deserve that nap! 🤗


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