Hi Everyone, Hope you are all doing well.
I've just received a letter in the post from the hospital with the dates for my next lot of scans. I'm still being investigated for possible lupus, currently I have been diagnosed with undifferentiated connective tissue disease.
over the past year and especially since my first Rhuemy appointment in December I've only had a few tests done which almost all came back negative or just showing inflammation and it just got me thinking it would be really interesting to ask which tests you have all had and whether you've had similar experiences of negative tests?
Blood/urine tests excluded I have had:
- Chest X-Ray (x2)
- CT Pulmonary Angiogram with contrast
- Pelvic ultrasound
- MRI Head with contrast
- MRA Carotid both
- MRV Venogram
- MRV Cerebral Veins
Would love to know if any of you have had any of these tests and how they went for you, especially the ones I have upcoming as this forum always has the best experience story's and advice!