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[Yogimegan]

I'm new to this.got told 12 months ago lve got discoid lupus has anyone got advice on how to help ease the sores.new to computers to

[Tiras]

👣👣👣👣👣👣👣👣👣👣👣👣👣

Hi Yogimegan;

Glad that you could join this Commuinty (family). There are a lot of us here that can give you advice that worked for us. However, we have found that with lupus it is different for each of us but, yet the same. That doesn't make sence but, then neither does lupus.

I have had rashes/blisters on me (from neck down to toes for about a year and a half. It is odd that I do not have any rashes on my face or from my neck up? I use coconut oil daily. I apply coconut oil from head to toes, after shower and stay nude and let the coconut oil absorb in to the skin for 20 to 30 minutes before getting dressed. I also will use it as needed all through the day. I also have 3 prescription medications that are creames and ointments from the doctor when they get extreamly bad. It is 2:00 AM here (can't sleep just woke up wide awake), but if you would like I will send you the name of the medications?

The lupus rashes/blisters (I have SLE) have been on my feet especially on my right foot, for over 2 years. The skin has become so thin and tender on top that I can not wear shoes. I have had to go barefoot for over 2 years. My doctor has even said and I carry a written statement from the doctor not to wear shoes. The doctor tell me my chances of getting an infection is greater by wearing shoes. If I wear shoes they will rub my feet raw and I will start bleeding in just a few minutes.

The bottom of my feet are so tough now I have no issues on walking on any type surface from rocks, dirt, cement, and even hot asphalt. I am a guy, I have a wonderful supportive wife, but being barefoot in everything I do and everywhere I go is odd. Yes, I go to church, shopping, restaurants, etc. everything has to be done barefoot. Fortunately I live in the southeastern part of the U.S.A. In th state of Alabama, and, it does not get that cold for long here. (However there is a winter storm watch here for tomorrow with up to 3 inches of snow possible) yesterday it was in the low 70's degrees Fahrenheit. Usually being barefoot is not an issue. Going barefoot now is natural. I don't think I wold wear shoes now even if I could!

Lupus has changed my life but, I have my Motto;

👣LUPUS WILL NOT CONTROL MY LIFE👣

If I can help you with my experience, feel free to ask! Go to my home page and you can see photos of rashes/blisters.

Wishing you and your family the best, and A 🎉HAPPY NEW YEAR🎉

👣👣👣👣👣👣Tiras👣👣👣👣👣

[Paul_Howard Partner LUPUS UK]

Hi Yogimegan ,

Welcome to the forum. I hope you find it a useful source of information and support.

We have a booklet about skin involvement in lupus which has some information you may find helpful. You can read it at lupusuk.org.uk/wp-content/u...

[Lucy_31]

Hello. Welcome to the community. Best wishes

[Cas70]

Hi Yogimegan - where are the sores - if you could give us more information I am sure you will get useful remedies. Keep working on those computer skills - it will help distract you a little.