Killer Country

[CandyPN]

Hi I am Jan 59 widow living in Western Australia which is one of the sunniest places on the planet!!

Sunshine and shopping centres most certainly wipe me out. It is 3 days to Christmas and I have been to the cemetry to see my Dad as my Mam likes to decorate his grave a little, but it is such a sunny day! I felt every second of it, sweating profusely. From there went to shopping centre for last minute food and into the fluorescent light straight from sun exposure rendered me so lethargic, thumping headache, I felt I could not carry on. I had a few sly tears in the public toilet. Am now home laying in bed tears streaming while writing this vent. So sorry I know you all suffer too.

Am loving the cool air of fan, but for just a small while as my Fibromyalgia which gives me lethargy too will flare and my stiff and sore body will end up throbbing all over. So wish I lived in a cooler climate country as WA is a killer!

If you read this rant and vent thank you for taking the time. As I am a widow I only have social media to talk to. Thank you 🎄🎅🏻✨ Keep safe and have a Merry Christmas and a safe and Happy New year.

[Barnclown]

Hello candy...your post hits home with me...I moved to the uk @ 21 (am now 63) partly because the summers & winters tend to have less extreme weather than where I grew up in east coast USA. My lupus is infant onset...summer heat has always been especially tough for me too. So am vvv much feeling for you, and am glad you've posted

Being with her at your father's grave will have meant so much to your mother....well done for managing that! Am sorry you're having to pay for that now. And I know: shopping centres are terrible for me too...am about to get my last festive season groceries from the supermarket: ugh.

Take care 🎄🕊🌟🍀 coco

[Ellieb123]

Hi Jan, I'm so sorry that you're having a tough time at the moment and I hope that it helps to know that people all around the world have read your post and can sympathise with you and your daily struggles.

I'm sending you a virtual hug!

Take care,

[Debba]

Hi jan, I'm on the east Coast of Australia in, central QLD. I'm struggling with the heat at the moment also although we are a lot more humid here than you are. I don't have lupus, I have vasculitis. I struggle just going to the mail box - wishing you a merry Xmas and hope you get some relief

[whisperit]

Hello CandyPN!

Its good to hear from you, even if you are feeling poorly at the moment. We all need somewhere to rant and moan (at least I do) without feeling that we are burdening friends or family. Here we can do that (at least I do!!) and know that we are among people who understand that feeling.

I'm looking forward to seeing my family over the next few days, but know that it will be really hard having to disguise just how much I am struggling at the moment. The sense of having a virtual community kind of hovering here in cyberspace will be a great help.

Please drop in whenever you feel the need - you will be welcome!

Mike x

[weathervane]

Hi candy

I live in ireland and we have the opposite problem here! At the moment there is a harsh cold wind which eats into your bones, eyes and ears. I think every country has weather that causes problems although when i go to spain the warm dry heat seems to suit me as long as not tooooo hot. You are in the middle of your summer at the moment so you really must be suffering, the aircon is also very drying on already dry eyes. I hope the weather improves for you and you can enjoy Christmas 🎄 🎅🏻

[Lupiknits]

Hello, and this is the best place to rant. We don't have your weather extremes, and I'm feeling the cold badly, but you will always get some cheer-up here, from around the world. Take care.

[Natura]

Hi Candy....understand how you are feeling. The past summer on the east coast of the US was unbearably hot. I do not like summer. I had to go out early in the am, or late in the afternoon. I basically stayed in my house all summer. Upsetting.

I dont know what I would do without this site. No one gets it. All my coworkers see that I look fine on the outside. They just dont understand when I have trouble breathing ( high CO2 in my blood), or Any of the other long list of symptoms. It really hurts. I dont talk about it ever.

Hoping you have a wonderful restful, peaceful Christmas, holiday!

[Emily00]

Hi Jan, I'm also from WA (Perth) so I feel for you- used to live further south which is cooler. Absolute scorcher on Wednesday (43 degree celsius! Thats 109 F!).

Been having similar problems in the last month with all the sunny days (Every day in summer the UV index is extreme for most of the day). I find just 1 or 2 minutes walking from my car is enough to start up the headaches and make me feel tired for the rest of the day and even the next day.

Hang in there, I hope you feel better and have a Merry Christmas!

[Loopydroopy]

Oh sweetie don't feel alone. We are all here with you. Here's hoping you feel much better soon. Gets lots of rest. Merry Christmas

[Paul_Howard Partner LUPUS UK]

Hi CandyPN ,

I'm sorry to hear that you are struggling to cope with the weather. We have a blog article about light sensitivity and lupus which includes loads of tips and advice which you may find helpful. You can read it at lupusuk.org.uk/coping-with-...