I'm Ok, Lovely people.

[Razoo]

Oh my goodness, how special and thankful I am to have this caring group. So I'm logging in to tell you all that I am doing good, my morning text was maybe a little scary for you all, but in the mornings is when I am at my worst, my body is stiff my hands don't close completely, Im sorry if I scared you all, it was not my intention it's just the way I felt. I ended up having a hot shower 10 mg of pred and my day got better I felt brighter, and I took my daughter shopping. I appreciate all your caring messages. Thank you.❤️

[Hidden]

I read it and totally related rather than feeling scared. Resolved to increase my dose of prednisolone for a few days so took my 3 tabs then and there with breakfast plus a Tramadol and woke a few hours later feeling much better. So thanks for prompting me to be decisive by the way you expressed yourself in your post - apart from that I'm not a believer but totally related to your desperation with pain. Glad things have improved for you now too.

[Hidden]

No, wasn't scared just full of empathy Razoo. I have this day after day and even in during the night I wake up with pains in my feet, knees, arms and stabbing/shooting pains all over my fingers. In the mornings I shuffle, yesterday was a bad morning for me, I cried just wanting to be released from all this. My fingers are so swollen, I can't close them either. My rheumy said to carry on with paracetamol and not to go on steroids, just wondering if he is right? I find it painful to hold a steering wheel as the pressure of holding it makes my fingers sore and numb. Even holding a fork and knife leaves an indent in them where they go white. Yesterday morning I had no energy, I had to sit on the sofa (which didn't help as I seized up again) but just slept on and off until midday. It was only then after I had a bite to eat that my energy returned slowly. I was taken out for pub supper at a pub and shook as I ate. Strange. Hope the shopping didn't exhaust you too much and you get through this morning too! Take care. Big hugs. X

[Hidden in reply to Hidden]

Has your rheumy not suggested anti-inflamatories as a good compromise Ladybird? Mine always suggested naproxen - which worked very well always but after a few days my GORD (reflux) would start playing up despite tummy protectors. My rheumy doesn't like oral steroids much although I am stuck on them just now. They aren't good for us in longer term and it can be very hard to get off them.

[Hidden]

Can't have any anti-inflammatorys because I am on 3 blood pressure tablets so anti-inflammatorys are a big no no. I'm allowed only one aspirin a day! 😕 shame as I really could do with some help. My blood pressure is too vulnerable (I'm only 50). Thanks for your help though xx

[flo_IarFachYrHaf]

glad to hear x

[kewsapril]

It really saddens me to me to hear that your in so much pain ladybird, is there a reason why your doctor won't give you steroid's?

Big hug from me.

Kay

[diane1428]

Hi know exactly how you feel. I cant take anti-inflammatory tabs as im on warfarin - though I have been prescribed gabapentin. However, you really wouldnt want to see me on that - I cant get up and sleep all the time. Not me at all. yep im stiff in the morning, Yep I ache all over but I wake myself up at 5.00am take a couple of paracetamol after taking 10 mins to get down stairs, take another 10 mins getting up stairs and go back to bed. When I wake up I feel a lot better. My husband and any sensible person would say take the pills to bed with you but firstly that takes preparation, and secondly the maneuvering of the stairs is my first regine of I can do this and I am going to do it. (Im just bloody minded).

I have to laugh at the illness or it will laugh back at me. My consultant has taken on board my saying I let him do the worrying, I do the living and you know what it works. I love to laugh at myself and encourage people to laugh at me especially when my words get jumbled such as this morning when my husband asked what bird outside my window was singing. My answer - its a music thrush. He started his day laughing. Love to see it.

Best of luck and chin up.

Regards Diane

[Razoo in reply to diane1428]

Loved your replyDiane, my routine in the?morning is to shuffle out of bed, make a cup of tea take it back to bed with me, watch some TV and flick through my phone, oh I also take Panadeine. After about an hour i start to thaw out then have a shower and get dressed.

Still sore mainly the hands n arms, but I manage to get through the day.

Take care .❤️🍀

[diane1428]

chin up. and all the best.