Scars...

[ava97]

hi everyone..i am on 15mg prednisolone.my doctor said I have to reduce my steroids dose...cause one can't take steroids for long time but I am facing some problems now days I am seeing some black type scars ND sometimes red types scars ND they get black after sometime...is that common for all of lupus patient?what types of problem I will face in this situation cause I m reducing my steroids dose..I feel some pain in my muscles also.what u people do to cope with this problem.?

[Paul_Howard Partner LUPUS UK]

Hi ava97 ,

Have you shown these scars to your consultant? Do they appear to be permanent?

We have a booklet with some more information about skin involvement in lupus at lupusuk.org.uk/wp-content/u...

[ava97 in reply to Paul_Howard]

yes they were seem more visible when I reduce my steroids dose.but whn I was on 30mg steroids even that time there was no scar.i know if I told my docoter about this he will increase my dose.there is something I should tell you...i am diagoinising by a medicine doctor...he is doctor of a famous hospital ....but the problem Is should I go to a dermatologist?cause my doctor didn't tell me to check up by a dermatologist.but the scars give me pain sometimes..now days the scars appear permanent.

[Paul_Howard Partner LUPUS UK in reply to ava97]

It may be best to ask for a referral to a dermatologist because they will have more experience in diagnosing and treating skin problems. There may be other treatment options that could be effective but without so many undesirable side effects. Are you on any other treatments apart from steroids?

[ava97 in reply to Paul_Howard]

yes I am taking hydroxycholroquine and ostacol d and methotrexate 10mg.and folic asid every Monday.u know when I was on 30 mg steroids there was no pain or scars in my skin but now the scars often comes and some scars remain permanent..ibam jzt tensed about this...what I should do??u know feel some pain in my wrist and finger also..mayb all lupus patient feel that but I can't bear that pain...whenever that pain comes I feel that I am going to die or lupus is active...mayb it is going to kill me inside..what I should do for this type of pain in hand I just want to know how all lupus patient fight against this??Paul I know I can ask all of ths to my doctor but they just put medicine they just simply takes everything maybe but I am really tensed about this and nearby I don't know anyone who has lupus..so I could discuus..

[Paul_Howard Partner LUPUS UK in reply to ava97]

Hi ava97 ,

When you are on 30mg of steroids it is likely to help keep your lupus symptoms in check, but this is quite a high dose of steroids and because of the serious potential side effects you can not stay on this dose long-term. If your current treatment regimen is not sufficiently controlling your lupus, then you need to go back to your doctor and discuss this. They may need to try changing your dose or a different treatment.

Joint pain is a common symptom of lupus. It may be worth posting a new question on here to ask other members how they manage theirs. Sometimes applying heat packs or having a warm bath can help to ease the pain a bit.

It is also worth maintaining a healthy lifestyle with a balanced diet and regular physical activity. You can learn more about diet in lupus here - lupusuk.org.uk/diet-and-exe... and more about exercise and lupus here - lupusuk.org.uk/lupus-and-ex...

[ava97 in reply to Paul_Howard]

thank you Paul for your good advice😊...i will talk about this with my doctor