Doc5ors in my area

[Suecon]

Does anyone know of a doctor on the list in the Liverpool, Merseyide area of the UK? I have a gp app on Tuesday morning and would like to ask for a second opinion.

Thans

[PMRpro]

I'm sure Paul and co have lists of experts in various areas.

[Paul_Howard Partner LUPUS UK]

Hi Suecon ,

I've responded to this in other places, but will do so here as well in case anybody else needs the information;

I don't know of any NHS lupus specialists in the Liverpool area unfortunately. The Kellgren Centre at Manchester Royal Infirmary may be your closest specialist centre - it is actually a LUPUS UK Centre of Excellence. A couple of the consultants there are Prof Ian Bruce and Dr Ben Parker.

There may still be some good lupus doctors in the Liverpool area. You could try contacting our North West Lupus Group to see if they have any recommendations? You can contact them through their website at northwestlupus.org.uk/

[Hidden in reply to Paul_Howard]

Hi Suecon,

I live in the Liverpool area but I'm afraid I couldn't recommend any specialists who work within the NHS as I've had a lot of bad experiences with them and switched all of my treatment to private some years ago as a result. If it is just a second opinion you need and would consider a private appointment for this, I'd be happy to share the details of my consultants and experiences with you. Please feel free to private message me.

Wishing you all the best in finding what you need.

Warm regards,

Kate.

[Suecon in reply to Hidden]

Thank you. I have a very nasty rash on my legs and wrist so I'm going to ask my gp to take a biopsy and refer me to a dermatologist. I might have more luck as I do have awful skin problems with this thing. I don't have antibodies or inflammatory markers, which makes it difficult to get a diagnosis. If I don't get anwhere I will certainly message you. Thank you again x

[Kaspinallsgr8 in reply to Paul_Howard]

Professor Moots at Aintree University Hospital is a Lupus specialist in the Merseyside area. FYI, He is very conservative though in his treatment of borderline patients.

[maurice1]

Hi I live in Liverpool and my rheumatologist is Dr Mewar at Broadgreen. He has been really good to me and my Nephrologist tells me that I couldn't have anyone better for my Lupus.

[Suecon in reply to maurice1]

I went to Broadgreen and saw Dr ******. She was dismissive and patronising. She didn't listen and ignored my most worrying symptoms and others she said were things like psoriasis, thyroid triuble etc. I was hoping for some insight into all my autoimmune diseases and a sympathetic ear to my many worrying problems, such as hallucinations and personality changes. Unfortunately I don't have any antibodies or inflammatory markers at the moment, despite many of the symptoms of lupus. Thank you for replying x

[maurice1]

Sorry, perhaps I should have added that when I had pneumonia last year, the GP said she felt a bit out of her depth and phoned Dr Mewar for advice. She told me that she found him to be a delightful man who had spent a lot of time educating her about Lupus and advising her on the best way to treat me. She was pleased at how much she had learned from him.

[Hidden]

I see a Dr Richard Parslew (privately) for my auto-immune related skin problems (Lupus and more) and he is very knowledgeable and listens. I believe he practices at The Royal in the NHS.

Feel free to message if I can help (or even if you just want to rant!)

Best of luck,

Kate.

[Suecon in reply to Hidden]

Thank you so much. You might regret saying that 😂😂😂. I've written the name down and will give it to my doctor in the morning. U had antibodies etc tho?

[Hidden]

Yes, sadly I do . I'm very fortunate to have Professor Graham Hughes as my main consultant so I know I'm in the right hands!

[maurice1]

My dermatologist is Dr Wilson, again at Broadgreen. He is excellent and was the first to diagnose Lupus (tumid lupus) for me

[Suecon in reply to maurice1]

I've not heard of that one. Did u have antibodies tho?

[maurice1 in reply to Suecon]

Yes I did. Dr Wilson didn't recognise the rash but couldn't rule out lymphoma or cutaneous metastases. I had a biopsy within a couple of day and Dr Wilson phoned me to say that there was no cancer but a massive amount of inflammation and after reviewing my notes he believed it to be lupus. The pathologist performed further tests which resulted in the timid lupus diagnosis. In those few weeks I g ad also developed at least 3 other rashes, all quite different from each other.

[vonnyrad]

After 35 years of visiting hospitals across Merseyside I have amounted a fair degree if experience and have personally met all of the doctors mentioned above , yes, even the famous G raham Hughes on one occasion, at a Lupus Group meeting.It really depends on the nature of your lupus.If you want a dermatologist because your symptoms are affecting mainly your skin I can highly recommend Dr Wilson. he runs an excellent clinic.I have yet to be treated by a rheumatologist who has been able to get to grips with my 'complex' medical conditions , I basically manage myself now.