Hello everyone ❤️ Following my first post bloods where taken to see if anything showed for SLE, my ANA was abnormal so doc referred me strait away to hospital rheumatology ( have appointment in 11 days)
Feeling all mixed emotions to be honest as part of me is relieved I will hopefully get answers finally and medication to help with all my symptoms ( which I've wrote an a4 paper back and front full! ) but then I feel sceptical that I'll see a rheumatologist who doesn't listen or pushes me out the door 😒What do I do then? My health and body have deteriorated so much in this last year....... reading things about how some dismiss you so easily and often, makes me worry.
My biggest is being so scared as I watched my mum die to this, she was 38, I'm now 38. I've had symptoms for years and years. I read about lupus can be in the brain, the information I wrote was exactly to a T of how I would want to explain my brain and symptoms 😳......... can anyone share there experiences with me? Warm wishes ❤️Emma