So painful ......: For the past 3 days I've been... - LUPUS UK

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So painful ......

georgie63 profile image
9 Replies

For the past 3 days I've been having extremely bad pain in my mouth......

I only saw the dentist last week so I know everything is fine with my teeth. But I can't actually pinpoint where in my mouth it is. Sometimes it's at the top then next time it's at the bottom. I can eat fine either side with no problems, so it's not toothache otherwise it would hurt.

I do have sjogrens so I'm wondering if it's that.

Has anyone else had pain in their mouth like this, if so what did you do to help it.

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georgie63
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9 Replies
misty14 profile image
misty14

Hi Georgie

Sorry to read you have a very painful mouth, glad you've been checked by your dentist. Maybe a referral to oral surgery at a hospital would help?. I can recommend Difflam Mouthwash as it has a steroid in it and numbs pain, helpful for eating if used just before meals. It is expensive if bought OtC and you can get it on prescription. Hope it's better soon, mouth problems are miserable. X

georgie63 profile image
georgie63 in reply tomisty14

Thanks Misty14, I haven't heard of that mouthwash before so I might give that a try.

I also told my friend who is a nurse and she asked me if i take gabapentin and how much, which i take 300mg and she said some people on that have jaw pain.

It's really painful and one that I've got to get checked out as its nearly every day I've got it now so I think a visit to the doctor is in order too.

Thank you for replying misty and I wish you good health.

Xxx

misty14 profile image
misty14 in reply togeorgie63

Good luck Georgie when you go to doctor. You can have TMJ which is inflammation of the jaw joint. Is it stiff and painful to open mouth?. Does it crack?. Hope you get good help. X

georgie63 profile image
georgie63 in reply tomisty14

When the dentist checks round my neck etc she gets me to open and shut my mouth and she said I have got some clicking there. But it's not painful and doesn't bother me when I eat etc.

But the pain I have is right along my jaw bone and I had it in my ear earlier. I know it's not my teeth as its in all different places, it can be along the top then the bottom and then as I said right into my ear.

But as my friend mentioned about the gabapentin, I think I'd best see my gp and see what he has to say. I have heard of the Tmj, and I also wondered about arthritis of the jaw too. So I really need to get an appointment this week before it gets any worse.

Thanks ever so much misty for your help.

Xxx

misty14 profile image
misty14 in reply togeorgie63

Hi Georgie

Best of luck for your GP appointment, let us know how you get on. X

englishrose67 profile image
englishrose67

Hi I've got lupus and I sometimes get a really painful mouth usually along the jaw line.takes a while for it to settle with strong painkillers .hope it eases soon for you Georgie 💊

georgie63 profile image
georgie63 in reply toenglishrose67

Thanks Englishman, it's nice to hear if others with Lupus do have this as well because it puts your mind at rest and stops you overthinking it.

Thanks so much for your reply.

Xxx

englishrose67 profile image
englishrose67 in reply togeorgie63

I know what you mean about over thinking things .let me know how things go x

dgreyarea profile image
dgreyarea

@georgia63, I use either paroxyl, ulcer ease or oral gel on bad spots. I also have Sjogrens. Hope you feel better.

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