Grandma newly diagnosed: I am new to these Boards... - LUPUS UK

LUPUS UK

32,210 members28,555 posts

Grandma newly diagnosed

mvinette profile image
1 Reply

I am new to these Boards. I was diagnosed with lupus last year. Although confused because it was the scleraderma tests that showed abnormal. This autoimmune stuff is confusing. My 32 year old son was diagnosed with Lupus a little over a year ago and he has had problem after problem. He has been hospitalized a couple of times and suffers experiences a lot of pain in his sternum. My 33 year old daughter lost her kidneys about 8 years ago due to autoimmune and they have yet to put a name on it. I have a 28 year old son who does not have any symptoms. Perhaps he will be the lucky one. My lupus is mild but obviously my two adult children have very severe cases.

Written by
mvinette profile image
mvinette
To view profiles and participate in discussions please or .
Read more about...
1 Reply

Hi there. It sounds as though your family has been through such a lot with Lupus/ autoimmunity. I'm autoimmune too - first diagnosed with RA five years ago aged 47 - now 53 and probably to be rediagnosed with Sjogrens, Lupus or Scleroderma. I too have positive bloods for Scleroderma but perhaps I will be diagnosed with UCTD instead because I seem to have bits and pieces of all the CT diseases but no classic symptoms of any one specific disease. I hope treatments are effective for you and your family.

Not what you're looking for?

You may also like...

Newly diagnosed

hi i was diagnosed with SLE lupus about 4 weeks ago and was wondering if anyone could let me know...
March2012 profile image

Lupus "Like" syndrome with APS, newly diagnosed

Hello everybody, I've mainly been posting on the Hughes Syndrome blogs, but I have been diagnosed...
anniesensi profile image

Newly Diagnosed

Hello, I’m new to this forum and was only diagnosed with SLE in late December. I’ve also got...

Newly diagnosed

I want to apologise before I start in case there are two posts as I have just lost my first one and...
Meg52 profile image

Newly diagnosed

Hi all. Just after the birth of my fourth child, I developed a slight raised rash on the side of...
sleepy-head profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.