I was diagnosed with SLE 3 years ago, after being unwell about 5 years. Have a circle of friends who don't really understand what Lupus is. I've had an heart operation, pleurisy and blood clots because of my heart. I'm on medication now which keeps the Lupus under control but I still suffer pain every day, some days are worse than others and have lots of flares. It seems to be getting worse month by month.