People talk about flares as if they come and go, wax and wain. My experience since being diagnosed two years ago is that I am always in a great deal of pain, just sometimes a lot worse than others. I take regular paracetamol and gabapentin daily. I am prescribed morphine which I take most days due to terrible joint pain and serositis. I take diazepam when my muscles start to spasm and contract. The only thing that improves my inflammation is prednisolone which The docs are trying to not increase due to other complications. I can't take NSAIDs due to my kidney. I know most people may disapprove of opioid use and diazepam use but I am not an addict, my pain consultant has approved them and I am on the same doses as two years ago which indicates that I am not building up a tolerance. These meds are the only way that I can remain in some form of work and get through the day. However, despite all these meds I am STILL in so so much pain. I just want to cry!!!!! Is this normal for us lupies? Does anyone else get this. I've just had enough of it all. If the pain would kindly sod off I could get on with my life. I know my ex couldn't cope with my pain, poor bloke must have been so tough for him watching me trying to battle on in agony and occasionally having a good blub! What a ridiculous excuse for a man, to leave someone because he couldn't cope with my pain! Sorry for the rant everyone. Just so so sick if it all. I seem to suffer from inflammation in almost every joint and chronic pericarditis/serositis and costochondritis. The inflammation in my jaw is so bad I have visions of cutting my lower jaw off, I swear it would hurt less. Sorry for the rant, I'm just so fed up and exhausted.I hate this sh**y disease, it just takes and takes and takes.
(Sorry I just needed that) . Someone please tell me it does get better?x