Bloods to find cause of early stroke, persistent migraine and neuropathic pain in June showed evidence of lupus and APS. Bloods repeated after 3 months showed increased markers. Neurologist seized on APS part of problem and referred me to a haematologist. Finally the appointment is tomorrow. Top tips for what to ask, what to expect and advice on if she will be able to treat the lupus which is the primary issue please.
My usual GP unwilling to follow the lupus diagnosis despite me reporting symptoms of it to him for years (bloods were a relief - the health issues Id faced for years fell into place), but a locum has referred me to St Thomas', and I should get a call to arrange my first appointment at the lupus clinic there, but I really need something to make me feel less awful PDQ.
What are your experiences please?