SLE and Pregnancy


I was diagnosed 17 years ago with SLE, I self medicate when I have flare ups. However 6 weeks ago I became really bad literally overnight, I am awaiting an appointment with a new consultant next week. However last week I found out I was pregnant with my 3rd child, approx 8-12weeks. I am still really poorly and pain is horrendous and all I can take is paracetamol till I'm seen at the hospital. I can't work due to this but I am Self employed as is my partner. Can I get any financial help and if so who do I talk to?

I've never claimed anything for my illness as I worked for DWP DLA helpline for years and never considered myself as bad as some cases.

Any help would be great as my partner is having to help a lot with the children and we are struggling

Thank you

6 Replies

  • Hi mum to be

    I have a daughter who has SLE as I do. She self medicates with prednisolone and was encouraged to up her dose during the pregnancies.

    ..can you be seen by your obstetric team asap?

    All the best



  • Hi Penelope-Mary,

    I have an emergency scan tomorrow and then hopefully next Wednesday I will be seeing a consultant.

    I have a 12 year old and 4 year old and apart from the normal aches and pains I worked up to the last month with both, I am just really struggling at the minute.

    Thanks for your reply

  • Oh that's good ! The scan will reassure you and then you need to chat with your doctor..extra care required 👍🏼🌻. Sounds as if you are having a flare.




  • So it is possible to have a flare up during? see I was advised its normally after birth it flares up, Which if I go off the last two pregnancies is correct.

    I was beginning to think my pain threshold was breaking down as its been that bad

    Thanks Penelope-Mary

  • No you are right, daughter Lucy did feel well by the second trimester,both pregnancies and flared afterwards. However I wonder still if you might have a flare as you are obviously not well. It won't be your pain threshold!

    A flare won't be harmful to the baby, don't worry about that.

    Just need to get you well, keep us posted.




  • Hi Mumtobe2017,

    Have you seen our booklet 'Lupus: A Guide to Pregnancy'? You may find a lot of the information very helpful. You can view and download it from our website at

    If you need a physical copy of the booklet, just send me a private message or email with your name and address.

    You may be eligible for Personal Independence Payments (PIP). One way to work out whether you may be entitled to any payments is if you complete the questionnaire on this website -

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