If you have RA you go on the TRACTISS trial but not if its PsA. You look in books on Sjögren's and Lupus everything is RA psoriasis barely gets mentioned. You show your rheum a photo of your mother's hand oh nasty Oesteoarthritis! NO it was advanced PsA! Nothing much has changed in the 50 years since! I have now got Lupus, so am I eligeable for the TRACTIS trial NO! Why! I also have Ehlers-Danlos I'm shrinking not swelling as my muscles are wasting. I have endured 14+ totally inappropriate operations seen 50 + specialists been given all the wrong drugs as I'm hypermobile spent hundreds of thousands of pounds on all this. We are now so poor I can't afford anything and my GP can't help me. He is restrained by the local health authority. Why?
I know EDS has only been out for just over a year but I have so far educated 8 consultants.
It would be interesting to know who has PsA because it's just as nasty as RA but you have to fight for recognition why? The photo shows calcium leaking through my skin.