i was diagnosed with SLE in 1996. i did not make any real changes in my life and carried as usual. in 2005 i had a stroke and its been pants ever since.
i have recently joined this site and i am amazed reading every ones comments. so many of you are so very aware of your lupus, your flares and specific symptoms. i read you speaking about your consultants and to be honest i am envious.
how have you all got so much info? how can i talk to my consultant without feeling that i am using his valuable time up or am wasting it even? i travel to the lupus unit once a year and last year (and i think this year also) i forget all the bad things that have gone on with my lupus!!!
i have had a real rotten few months and have an appointment in march.