Hi. Continuing my search for answers. I still have no feeling beyond my throat. Pharynx? Do you have this? Is it called a thickening? How do you cope with it?
I still feel unwell. My face is covered in spots which I cannot clear despite all the adverts cures etc. I drink at least 10 pints of water every day, because of my persistent dry mouth and throat. I now have eye drops prn. I have bought a humidifier to help moisturise everything and curb my annoying cough.
I have had another gastroscopy but nothing was found except possible gastritis. Do you know... does this take away your appetite?
Is there another investigation, other than barium swallow that would show my oesophagus and any problem caused by the Sjorgrens?
I have a review with the Snr GP next week. I dont expect any help from him but would like to be in a position to know more about how Sjorgrens can affect you so I can ask for investigations or treatment you may recommend.
I don't know if he will diagnose Sjorgrens or will want to leave it to the Prof I am to see next month. Are there any other tests or symptoms which clinch the diagnosis? I should add I have horrible itchy ears and dry skin, despite the Mount Vesuviuses I display on my face.
You know I have Lupus, AIHepatitis, Menieres Disease and all this joint pain and dryness.
As always, thanks to you all, gurus and worker bees alike for all your help with this. Knowledge is power, and I want my army at my back again for going into the GPs den once more.
Much love, better days