I just watched this link from the USA Alliance for Lupus Research....am sending it to my family & friends who are struggling to understand how lupus affects our immune systems...(it's easy-peasy to understand... 🤗):
m.youtube.com/watch?v=5Ta-6...
🍀🍀 coco
Cool coco I will look at this, more valuable info from you yet again, thanks for looking after us all. I know a lot more about my other problems since checking out some of your links. I am reading "The Paleo approach" by Dr. Sarah Ballantyne PhD and I am hooked, just need a couple more days and I will know what to do to,start my anti-inflammation diet, again down to you. Thanks coco😎❤️😇 Love noonoox
Ps trying coconut milk and it's not at all bad, what's your take on that, and any other things you have tried. Worried about the dairy is there an alternative to butter etc. haven't got to the food bit yet in the book it's such a big book to get through, 432pages long and don't want to skip any bits.
X
🤗👌👍 thanks noonoo...looking forward to your next update
I've never been into butter/marg etc, so avoiding them hasn't been a prob for me. I drizzle a bit of virgin olive oil instead.
Lots of people benefit from coconut products of all sorts. I tried them, but they mostly don't really agree with me, although I like the clear coconut water tesco & co sell in chiller depts very much...but not often as it's a bit sweet for me
My route to antiinflammatory eating started with trying the paleo diet...this was a good start, but didn't turn out to suit me long term...my experience is that many of us end up designing our own diet system by studying books, picking & choosing the elements that prove most helpful from various systems....as time passes we learn more about our individual conditions and what works best for us....as I've aged, I've continued to adjust my regimes in tune with how my bod is changing...& on & on. I think this is exactly what you're doing now...go for it!
🍀🍀 xo coco
Thanks coco, yes you are right I think I will possibly need to adapt it somewhat when something doesn't agree with me, just go and try the next, I did wonder about virgin oil I have some, only recently seen the coconut water in the supermarkets. I drink a lot of water but sometimes it plays on my gastric reflux at night if I have too much, (always take a glass to bed, my mouth gets very dry) my breath is terrible in the morning, I Put it down to the meds.
Looking forward to watching the link when I sit down for my break at 13.30 which is when I take my PLAQUENIL, got the Zentiva one and it does say 4 hours apart from Omeprazole, but I know you take it a while after. Just don't want any issues with it so sticking to it. 4 days in on it and only a bit of nausea and flatulence, if I remember the flatulence didn't go, I Use to blame the porridge when I had it,as I Use to have it every day all year road, but can't now.
Take care love noonoox
👍👌👏🍀💃😘
You're a star!☆☆☆☆☆☆☆
What would we do without your amazing knowledge and finds of useful input?
This post has proved very useful in the situation,which you know about, I am dealing with at the moment.
Actually thinking of forwarding it to a certain ostrich of a school head although it maybe a wee bit too much for them to take in ; )
I have found the more I have tried to educate others the more folk I have found who can't even look up the word clue in a dictionary alone have an interest or grasp of one.
Sorry the education departments I have come across in relation to young peoples illnesses always bring out the best? in me 8 ).
Apparently ,according to the head of teaching at a certain high school," lupus is nothing to do with the immune system ! It is just another type of arthritis!?
Which as ever body knows is just a wearing down of the joints so children don't and can't get it!.I am good friends with the top lupus specialist Kim *******"
Well I See someone "doesn't get it" .
I have never come across or heard of the person but if they are real and you get an appointment with them refuse it if that is the info they are giving out.Scary.
I am going to have a meeting with the head again and Senco with some of Lupus UK leaflets and info hoping they will actually read them and see sense.
Keep the brilliance coming our way Coco
Have a lovely evening xx
EEEEK, GRRRRR: these "experts" who know "experts"...how I'd love to watch them watch this beguiling little animation ...they'd probably need to see it several times over though, they're so blinkered....
GO EFFIE GO: we're with you in spirit! 👍👌👏👏👏👏🍀🍀🍀🍀
XOXO
Thank you for posting this Barnclown 😃 I hope this will make my family and friends understand exactly what is going on. They know I am ill but I sometimes feel they don't believe so much can be wrong with me.
I do hope seeing this helps them: it's such a simple little animation. But the point it's making is so BIG. Once the message sinks in, I hope your family & friends begin to understand
XO 🍀
PS How is your neck today...hope you're getting some relief from the pain...feeling concerned about you
My neck is still really painful. Can't turn my head so have to turn my whole body. Will try and get a phone consultation with my GP tomorrow.
Good. I do know that feeling well, but at least I knew specifically what it meant in my version on this...I think your GP or some medic would do best to examine you if at all poss. Take care 🍀😘
Have an appointment with my GP at 4.40pm. I was told there were none but left him a message. Starting last night my fingers on my left hand have felt numb. I can still use them but it is like I have a glove on. He phoned back and gave me an appointment.
Excellent showed these to my aspergers daughter (22 yrs degree in science) and aspergers grandson (6 yrs thinks he has a degree in dinosaurs) both loved them on different levels. Eli keeps saying is that your B cells nanny or T cells now!
Help ! ! lol x
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