"One-off" USA lab test for SLE has proven effective...

[EOLHPC]

...and is helping doctors diagnose patients with "Difficult-to-Diagnose" Lupus

HMMM 🤔...this news is making me think ....

Here is an excerpt from the press release, as quoted by Sara Gorman of the popular Despite Lupus Blog:

"Marketed as Avise CTD, the diagnostic tool has recently been proven in studies to be a significant improvement over traditional lab tests. It is the only validated lupus test available incorporating scientifically proven CB-CAPS technology, and it is having a big impact with doctors and their patients"

Click on this link for the whole official press release:

thevistapress.com/46910-2/

And here is the Despite Lupus link:

despitelupus.blogspot.co.uk

🍀🍀🍀🍀 coco

[misty14]

Hi Barnclown

Many thanks for sharing this lupus test breakthrough. I wonder if we will be able to have it here?. It could help so many of us get a proper diagnosis.

I hope you are as well as can be X

[EOLHPC in reply to misty14]

Exactly...I do wonder too...and I cannot help but wonder if this test actually will stand the "test of time"....fingers crossed it does....but I am so wary of easy peasy solutions...eg why haven't we heard more about this by now....am going to ask everyone I can eg my lupus clinic etc... 😘🍀

[misty14 in reply to EOLHPC]

Hi Barnclown

We tend to be behind your good friends across the pond because of funding issues!. Good idea to ask your Rheumy, I will too. Interesting what we learn. X

[EOLHPC in reply to misty14]

So true so often... 👍🍀😘

[Penelope-Mary]

Oh good, a read....thank you coco! Always something stimulating from you 👏🏼👍🏼 Bravo!!

[EOLHPC in reply to Penelope-Mary]

Am so glad...you're always welcome, PM 😉👍😘🍀

[Happykins]

Thanks for sharing this Coco, as always, your posts are v enlightening xx

[EOLHPC in reply to Happykins]

👍😘🍀

[Hidden]

What a week. At last a new drug is finally approved here when its be approved, as far as I'm aware in America and Europe for a while and now our own test!

[EOLHPC in reply to Hidden]

🦄🦄🦄🦄?????🤗🤗🤗🤗

[noonoo52]

Hi coco, see Professor Edwards this Saturday will take a print out for him, he possibly already seen it, but would be great to have that test across the world to give patients a quicker diagnoses. Well done coco, our Illustrious leader comes ups trumps again.

👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻👏🏻😇 

Take care coco, 

Love noonoox

[EOLHPC in reply to noonoo52]

Ooooo: please let us know what the prof says!  Am just feeling that things like the debate over sero neg diagnosis makes tests like this one yet another opportunity for medics to leave suffering patients in limbo...🤔

🍀😘🍀😘

[noonoo52 in reply to EOLHPC]

Yes coco I totally agree, the years of patients going undiagnosed, diagnosed and re-diagnosed could now be a thing of the past. It would be a wonderful day if it happens. Now all we need is a cure.

I was amazed by a comment made by the girl I spoke to on the telephone when speaking to the medical insurance company getting authorisation for my visit, she said this is a new thing Lupus, I was taken back a bit thinking how do I explain this, we had a chat and I said do some research on the disease, you will find it very interesting and informative so when you next speak to a lupus sufferer you will be well informed. I think from another comment from her that specialist don't necessarily make it a point to give that information that their patient do in fact have lupus as she said you are not covered for any treatment for lupus, I said there is no treatment as such other than medication. I guess she was saying that if I needed a transplant because of the disease then I would not be covered. 

Reference the tests I suppose it's a case of watch this space. We don't yet know the cost implications. As someone said its the funding in this country.

Take care.

Love noonoox🙋💉

[nanleighh]

I don't think that this is mainstream. Because if it were rheumatologist here in the U.S. would be ordering the test and they are not. 

[EOLHPC in reply to nanleighh]

Thanks - v interesting 🤗🍀

[noonoo52 in reply to nanleighh]

Apparently is was tested in 15 lupus centres across America, it's taken years to get to that so it will probably take years to get anywhere else, no different to newly developed drugs. I found some info on youtube.

We can only hope for future generations.

[EOLHPC in reply to noonoo52]

Gosh...thanks so much noonoo... 🍀🍀🍀🍀

[noonoo52]

Hi coco, follow up on this topic. Saw the Prof this morning and at the end of the appointment I Mentioned this CB-CAPS technology, I also gave him a print out from vista press from your link. The prof said that it was posted in a journal that is recognised but not one of the top journals, if it worked it would be in the BMJ (I think online) I thought he was going to through it in the bin and I said this to him but he said no I am taking it with me to look into. He carries out a lot of research so hopefully he may have some news in 6 weeks when I see him. I think you can read about him on the Southampton.ac.uk/medicine/about/staff

Or just look up Professor Christopher Edwards Rheumatologist it's quite interesting subjects he has written about. Well I found it interesting.

I suppose again it's watch this space.

Take care coco. 😎🍀🍀🍀🍀💐💁🏻

[EOLHPC in reply to noonoo52]

👏👏👏👏👏 this is insider knowledge, noonoo: FASCINATING: many thanks: am looking of inward to your next report! Will look into Edwards: am so glad he is by your side!

🍀😘🍀😘

[Inthelupus]

I just got my results vack from the Avise lupus test. While I am glad for more “proof” because every new doctor always wants to prove for them selves it really IS lupus, the standard for diagnosis us still a doctor’s decision on the 11 common criteria.

[EOLHPC]

V interesting. Thanks. I think i’d feel the same way.

In the UK the NHS follows a set of strict internationally devised diagnostic criteria for all forms of lupus & lupus-like conditions, even though these were primarily designed for monitoring lupus.

As i understand it, medicine is unlikely to switch over to a once off lupus test anytime soon