Hi, I haven't actually been Diagnosed with lupus but 'connective tissue disease' I have been taking 400mg of hydroxychloroquine daily for nearly two years which has helped until recently my hands and feet are very painful and my joints are swollen and have hard lumps?? Also feeling like I can't stand up straight without leaning against something as I feel jittery and weak and have extreme fatigue.
Last week I went to my gp about my hands and feet who gave me a sick note for work and told me to contact rheumatology, I contacted the rheumatology nurses and have been given a depo medrone 120mg injection, I have had one of these before and it worked within a few hours but this time I don't feel like I've had any effect from it?
The nurse was lovely and said not to worry if it doesn't work because there's other treatments I can try, but I'm scared to as they've been described as 'toxic' to me before so I'm obviously reluctant to try them.
Just feels like I've got absolutely no control over my own body any more and no quality of life
Totally fed up with it.
Thank you for reading my moaning and sorry if it doesn't make much sense my brain feels like mush!