I am having almost identical symptoms and it is wonderful to have them validated! For nearly 15 years I have suffered with severe fatigue and body rashes. Not one physician has ever appeared concerned, even though the swelling in one leg is severe and has been with me 15 years, despite a daily dose of lasix.
I have been diagnosed with an autoimmune disorder of unknown origin, mimicking Lupus, but no physician has wanted to label me as a Lupus patient. I know your suffering, and it is indeed suffering! Just one of my symptoms is exactly as you describe: I am slender and have always been active. I exercise regularly. Each morning, upon waking, I have so much swelling in my hands and feet that it is difficult to take even a few steps. Even though I am continually using cream on my extremities, I have what feels like overly dry skin, but the creams do very little good. My feet have become so painful that my first few steps upon the waking are excruciating, and my hands are worse. The pain in my feet dissipates quickly, but the pain and swelling in my hands - never. It is my constant companion.
Does anyone have any idea as to what might be happening with my body? I also have been diagnosed with chronic fatigue and fibromyalgia, and most recently non-hodgkins lymphoma (although I do not currently require treatment.