I've recently been diagnosed and I'm having a pretty rough time :/ Im taking Plaquenil which seems to help a bit. I've been taking it for about 4-5 months now and im on the twice daily dose. I'm 21, female in the UK and began with skin issues when I was 15, which were but down to eczema/ psoriasis/ SLE (but didnt have other symptoms). I developed anaemia 3 years ago and GI problems 2 years ago. I lost a lot of weight last year for no clear reason and despite excessive eating. I kept fainting and collapsing. I also have a heart murmur, which may or may not be significant. I have Raynauds and a history of chest infections/ suspected asthma.
I've developed a spotty rash on my legs which is puzzling my doctors… I wonder if any of you have experienced this? My kidneys may also be playing up also. I'm waiting for test results at the moment, but I started urinating blood this morning and my doctors think this is related to my UCTD.Any advice for stubborn headaches also? I was advised to take baby aspirin but think this only helps marginally!
I have so many questions sorry! I also seem to have fluctuating levels of white blood cells. They were very very low two weeks ago but last week were fine and my glands fluctaute majorly in size. Again, any ideas?
Do you find anything helps the fatigue or concentration side of things? I'm studying veterinary medicine and I'm finding myself wanting to be in bed by 11am, so actually doing work outside lectures is currently out of the question
Do any of you find trouble with mood swings too? Sometimes I just break down in tears for what seems like no reason and other times I'm really happy… Its so confusing!