Low mood with UCTD

[redmaggie]

Hi folks, I experience low mood /depression and wondered if others with similar diagnosis experience the same. I cannot seem to shake it this year. It's not severe enough to call an emergency but all the same I seem to be dragging myself through the days and (broken) nights. Its hard to figure out what is tiredness, the effects of persistent pain or just the world situation. I have had to "battle" some aspects of my medical care so that hasn't helped. I would be interested to know if depression is a symptom of UCTD, or a reaction to it! xx

[LuzyCLL]

I don't have a diagnosis yet, but suffer similar symptoms. Some days it's hard to change my thoughts, but with practice you can. There is a lot to be down about, no one (my friends or physicians) understands why I feel like this or can relate to it. The moon was just full, I know that make a difference, but today I am not feeling good, I have to force myself to do things. Any illness that makes you feel sick all the time is depressing, it takes a lot of will power to overcome it and try to remain pleasant. I have an appointment with a new specialist next week, hoping for some help.

[redmaggie in reply to LuzyCLL]

good luck with your appointment, i hope you get some good progress. although I have been stacking symptoms for years, a few months ago a rare blood antibody was found so a diagnosis is "official". The relief was short lived. It's not something others understand. Self care and self compassion are key x

[Tanitani]

Probably both. I have to regularly do cognitive therapy, and take meds not to be depressed. Depression is connected to inflamation

[redmaggie in reply to Tanitani]

Ah, that's interesting Tanitani. I've done CBT in the past, so I'll make the effort to keep at it.

[BonnyB]

Id like to know the answer to that too.

For me, im ok and can just about cope when im not ill with cold, uti etc or having a flare. But during these these times its like a black cloud comes down over me. My whole personality changes. I go in my myself, feel desperately sad and empty. Do does inflammation affect your mood? Or am im panicking that ill have another big flare that lasts for months and its axiety?

I do know in those moments you feel like nobody understands you and how you feel.

There are lots of here that do, so please keep chatting to us, youre not alone xxx

[redmaggie in reply to BonnyB]

Im sorry to hear that, it's a horrible feeling. Can you find some self care that helps? In a bad patch I tend to get cross/irritable too which pushes others away - so unhelpful! When bad I keep reminding myself that all things pass. The night time waking can be the worst for feeling rough. outdoors, mindfulness and breathing exercises are helpful for me.

[BonnyB in reply to redmaggie]

yes,I walk my dog. Shes kept me going through those times. I know now that it will pass in time but just wish I knew why?

[BonnyB]

Look at tinylittlemac post 3 days ago too. Some interesting things about brands etc x

[StriatedCaracara]

I'm finding since UCTD diagnosis that been depressed. Have confirmation something is wrong, and now can understand things more..accepting found hard, also communicating to others..they switch off ( even nurses at eye hospital who do the health questionnaire when don't see doctor) .never learnt about SLE let alone UCTD...

[redmaggie in reply to StriatedCaracara]

Hi there. It's a long road with these weird complaints isnt it? We have to learn about it ourselves. take care. x

[BDG_2018]

I just completed a round of CBT for Low Mood and Anxiety, so you are really not alone.

[redmaggie in reply to BDG_2018]

How did that go? I hope it helped. take care x