Hi, I hope you don't mind posting a bit of a panic post. I think I have scared myself and perhaps need some perspective!
Last night I woke up wheezing quite bad again (always on the inhale). It just wouldn't rest. Until eventually I took two paracetomal and my blue inhaler (Salbutamol). It really scared me. And I managed to cough up some brown mucus.
My situation at the moment is that Ive just had two rounds of antibiotics for a supposed sinus/ middle ear infection with painful eye, temple, jaw and ear pain (4 weeks). I have also just had an asthma test with reversibility. Ive had a year now of increasingly annoying and nagging dry cough/throat. The results showed a slight improvement but no significant result - so not asthma. Nor was an obstruction evident. But prescribed a steroidal inhaler as the nurse distinctly heard my wheeze. Suggestion of allergy (never had allergies before) and just had bloods done for this (waiting results).
I quite a few of the other symptoms of Sjorgen's. Dry eyes, sore eyes on movement, difficulty opening them in the morning, focussing problems. Dry nose, very very dry mouth. Im increasingly stiff on the morning or after having sat down for more than 5 mins. Sometimes its hard to write with a pen. I have peripheral never hyper excitability - constant twitching never goes. Muscle spasms - painful. The other night I got really sharp pain in my collar bone breathing for 3 hrs and then it faded. Then really sore back spasms.. I felt utterly exhausted in the afternoon. Loads of other things, I could go on...
But the wheezing scared me and is new thing perhaps over the last 3 months. I haven't got hold of the steroidal prescription but will get it today. I have a steroidal nose spray too. Im due to see the GP for results of general bloods tomorrow but if they come back normal does that mean the end of the line for any Sjorgen's diagnosis or should I push for specific tests? Does any of this sound like Sjorgen's? I just feel so convinced that it is reading and researching about it... but if the GP says my bloods look fine - what next?
I am so fed up of having one good day only to have many bad ones. Im so fed up of believing there is something else going on but my family looking at me as if I am just a hypochondriac!
Suggestions regarding the way forward would be fantastic. Im just feeling a bit at a loss this morning.