I asked my GP to refer me to Leeds as I did not feel my local hospital were looking after me. I never saw the same person twice and although I should have seen a consultant in March for which I got a letter asking me to make an appointment they could not give me one as no staff.
I applied for PIP and rang to ask if I could have a copy of my lung function test, told no. It was then in May that the secretary said you were due to have another lung function in March, so I will get the consultant to look at your file. I have since had a letter asking me to go for a lung function test and a form for more blood tests. I have now had my repeat lung function test, similar results to before and my + Panca has come down, I am on Azathroprine. Plus an appointment 12 months from last one.
My thinking now is should I stick with local hospital who now seem to be doing something? Or Give Leeds a try, I now have an appointment for the end of August? I understand that Leeds is a centre for excellence for AI illness . At the moment I am down as UDCTD and Raynards.