20,875 members16,568 posts

Gp appointment

So I had my appointment today.

Saw a different one than I usually do. He was a fairly young doc so was a bit hopeful that he wouldn't cut me off halfway through and tells it was a virus and to take some paracetamol and rest. It has happened more than it should do.

So after I went through the list of how crap I had been feeling he said he wanted to do some bloods. So am going up tomorrow to have that done.

He then went on to say he had a couple thoughts on what it could be but didn't want to jump to any conclusions.

The first one he said was lupus! Surprise surprise! He isn't doing a blood test for the lupus but for crp, fbc, lft and also Hughes syndrome.

He said he was testing for Hughes because it can make you clot more than normal along with fatigue, headaches, dizziness, memory disturbances along with some others.

He then went onto say that it could also be chronic fatigue syndrome or m.e.

Depending on the blood results - which I am going back for on 3rd July - he will then refer me to rheumatology about my joint pain.

I honestly don't know how to feel. It is a good thing he is looking at why I am feeling so crap all the time. But in the other hand if/when my bloods come back normal what will be do then. I didn't even think to ask what the next step will be if bloods are negative.

As mad as it sounds I don't care what it is I have - lupus, Hughes, m.e - I just want to know.

Hope you are all having a fabulous day. Xxx

2 Replies

I feel your pain.

Atleast he is doing sometime, but I think Gps can only req certain bloods. I would push to see a Rheumatologist, when I first went to see a Rheumatolgist she requested more bloods, they took 12 tubes full!

Fingers crossed you get some answers soon.

Take care


Thank you for replying.

The problem I had last time I tried to get rheumatology referral was they insisted on me having certain bloods done before I got a referral and they came back as normal so was refused an appointment.

Same applies here. If the bloods come back as normal I don't even get in the door!

It's frustrating!

1 like

You may also like...