So today I was finally diagnosed.....
My appointment was amazing, it was with Dr Lanham and Prof Hughes....they were both so attentive and adorable. I sent in all my test results, symptoms etc before hand and where i am so poorly had to use my motor scooter but they got it all. So I was diagnosed with " The Big 3" Lupus, Sjogrens & Hughes and they said every symptom I have was classic and my facial rash pictures I sent in (horrific) was discoid lupus wrongly diagnosed as Acne Rocsea......So started on Plaquanil, more bloods run and have to have a bone desity scan and revisit in 3 months where they can start to look at some other options but they want to start me slowly where I am so poorly, they also said its classic when you have Hashimotos as active as mine is as my TgAb's are in the 1000's
Such a long journey to get a diagnosis now pray for better health