I've had lupus for more than 15 years...main problems being lung fibrosis, fatigue, APS, raynauds...but for last 18 months developed RA symptoms which got worse and worse, and in last 5 months at least been terrible...not just joints but also seems muscular, total weakness in arms and legs, excruciating pain not just in first part of day but lasting till 6 in evening. this meant a I have not been able to do stairs without real difficulty a lot of the time, and yesterday I could not get into my car without the pain making me cry. so far...pretty familiar to lots of you I am sure. (Meanwhile on prednisone since 2007, hydroxy, and was on mycophenalte for years but they found it was not having any effect about a year ago, so stopped it and the plan was to start methotrexate or cyclophos, but I have had so many chest infections my wbc has not allowed me to start this yet...next month fingers crossed)... But... Explain this..today I woke at 5am, not unusual as often pain does thwt...but today I woke, jumped out of bed and could walk, bend, go down stairs in normal way and seem an entirely different person. yesterday I could barely type for pain...today nothing hurts at all! Obviously I am delighted...but I just wish I Had some explanation for this. I would be really interested to know if anyone else has had things get better so dramatically and mysteriously as they can get bad?!
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