Hi, I'm new to the site and I'm so glad I found it!
I'm off to see GP again today to discuss blood results from dermatologist...
I've been having symptoms for over 10 years but just have never associated them with anautoimmune as they present themselves at different levels and different times.
I'm really down at the minute as I've had what is possibly a flare up (of what is to be confirmed) or I am going completely mad and imagining the pain in my joints, fatigue, hairless, mouth ulcers, rash...and so much more. Told by one locum GP to take paracetamol and go back if I wasn't better in a week - that was 3 weeks ago. Symptoms not any better but not any worse at least.
I'd already had an appointment to see a dermatologist as I'd been itching and scratching myself stupid over the past couple of months ( diagnosed as dermographism)
I was so ill when I had my appointment and my rash on my face so inflamed that the dermatologist suggested it could be malar rash and ordered lupus tests.
This is where I'm at today - finally going to see my actual GP, not seen him for over 3 years. I'm taking my wonderful partner with me as I cannot drive at the minute but also because he reminds me of what I need to ask and will help me fight my corner. I don't feel strong enough to fight but I know i need to. 10 years, I cannot go through another 10 years of poking, prodding and made to feel like a hypercondriac.
So I'm off to see if I have any answers today. I'm trying to stay positive but I have already had a bad week - work finished me so I feel like an utter failure but hey ho - it could be worse, I know that but my perspective is a bit off at the minute.
C