Private specialists Newcastle upon Tyne ? Dr Grif... - LUPUS UK

LUPUS UK

32,072 members28,394 posts

Private specialists Newcastle upon Tyne ? Dr Griffiths?

jp83 profile image
jp83
5 Replies

Does anyone know of a good private lupus specialists in the Newcastle upon Tyne area.... There's apparently Dr Griffiths at freeman NHS hospital but I don't know if she has a private clinic also?

My mam has ANAs, lots of symptoms... Anti dsDNA negative and so I think her GP is taking that as she doesn't have lupus.... Correct me if I'm wrong but I think that's not right is it?....surely anti dsDNA can only confirm the presence of lupus... not confirm the Absence of it?

Written by
jp83 profile image
jp83
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Lupeylass profile image
Lupeylass

I don't know if DR Griffiths does private consultations or not. I wa was referred by my GO. The referral did not take too long. Dr Griffiths is brilliant she listens to you and is very approachable and thorough. She involves you in all decisions and

You can also contact the specialist nurse which is very helpful if you are worried about anything. The support I have received has been so much better than at my local hospital.

jp83 profile image
jp83 in reply to Lupeylass

Thank you very much lupeylass... I might see if I can get transferred to her seeing as professor Khamashta is in dubai for a year xx

Whathappned profile image
Whathappned

I see Dr Griffiths also. I don't know if she has a private clinic as I see her as a NHS patient and was referred to her via another consultant who I was seeing for CFS but my ANA and Ck where elevated and that doesn't fit CFS.

Anyway as Lupeylass says she is brilliant. She listened to my history and soon I was started on steroid injections and hydroxychloriquine. She now has me on methotrexate and I am down to 6 monthly visits. I almost feel my old self and I definitely feel you should try to see her

Sarah74 profile image
Sarah74

I think you'll find that Dr Griffiths and all the other consultants are NHS only and don't do "private clinics"... Not in this area anyway

jp83 profile image
jp83

Hi Sarah when you say not in this "area" do you mrean not in Newcastle or do you mean not running clinics for Lupus specifically?

I just don't know how my mam would get assessed\referred if her GP isn't recognising there may be an issue.

Not what you're looking for?

You may also like...

Did anyone posting here start their lupus journey with positive blood results without clinical symptoms?

So, following my visit to the dermatologist on Tuesday to be told I had rosacea not malar rash... I...

Disappointing twist

Hi all, Just wanted to say thank you for your support and comments. I got all my labs back but one...

Coronavirus: New antibody test 'with 99 per cent accuracy' approved for use across Europe* - an IgG test

'Positivity for anti-double stranded DNA (anti-dsDNA) IgG antibody is a diagnostic criterion of...

How many people here have Sjogrens Syndrome?

Having noticed a few posts recently which have mentioned Sjogrens, I was wondering just how many...

skin biopsy

If dermatologist did a biopsy of my scalp and said it was psoriasis could they be wrong? Could I...