Sorry in advance guys, I was diagnosed with SLE back in September, the rhumy at the time basically gave my hydroxychloroquine and told me to get on with life I would be fine. I explained I was in the second year of uni and worked full time as a waitress and he said I would be fine. Jump to early December and I was in hospital with chest pains and breathing problems, cue course of steroids, chest X-rays, CT scans and heart scans. All showed up nothing too major, or as the rhumy told me "there is nothing there so you must be okay" walked out of appointment and cried! Rang my GP (who is wonderful and listens to everything I say), she suggested a second opinion. Off to a new rhumy (fearing the worst!) pleasantly surprised as she was pleasant and listened to me. Anyway so just got back from the doctors this morning and apparently my GP thinks I has Vasculitis, the bottom of my legs and feet are swollen and covered in a wonderfully itchy, red rash which burns when touched. I have random swelling on my right hand near my little finger and my thumb, first and second finger on my left hand are swollen. Feel like crap and absolutely shattered all the time. So after putting my sick note into work (who luckily are very supportive) and a quick call to the OH (who is also wonderful) I'm sat waiting for the rhumy nurses to call and advise me or the GP what to do next. Just wondering if anyone can relate to any of this and also what you would suggest I did as all I get from the GP or rhumy is we don't know what will happen next so you need to come see us when you get weird symptoms (something I am also very bad at).
Anyway sorry for the rant, guess I just needed to get it all out!