Sorry but bloody hell!!!!

[toni66]

My chest is still hurting, feet killing me my knee has swollen and keeps giving way and my hand is going into cramps about 40 to 60 a day and the pain is bad, but hey ho your looking good, I just want to scream and say fuck you....I am so sorry just in so much pain x

[Slowmo]

Oh poor you, this illness often makes us all feel the same as you do right now. You are not alone, I know it's really hard to think positively when things are bad, we all have days which are worse than others. Maybe seeing your GP on Monday may help, or, contacting your rheumy. Maybe your medications could be tweaked?

All the best,

Slowmo,

p.s. I take glucosamine and condroitin to help with joints etc. maybe worth a try.

[twist1]

Hey toni66, sadly this brings back memories for me, everyone is unaware of hidden pain and before lupus my own perspective of living with pain was completely different to what I expected. I don't know if it will help but have you considered taking a good vitamin for the cramps, some of the meds we take leaches important minerals from the body. It might be part of lupus but it could also be that. I take Lamberts multiguard osteo advance 50+ it's a high potency vitamin covering the main stuff and some I've never heard of.

Also I know it might be funny but have you thought of getting a mood calendar. I found one and have it on my desk at work. You flick it over to show how your feeling, although it lacks some of the choicer expletives I was thinking of making my own and when you get the comments how are you you can just point to the calendar without having to explain. That or some badges lol.

Unfortunately we get bombarded with symptoms that vary, I wish I had an answer for all the pain aspects still trying to solve them myself, but I sometimes get hope chipping away and trying to deal with the ones I can. It gives me a sense that at least I can control something's about myself

The only predictable thing about lupus is your symptoms will change, stay strong, this too will pass

[Loopylooby]

Sorry to hear you're having a bad time of it toni66. Def contact ur Rheumie and seek advice. Loving the calendar idea that twist suggested - would work a treat in my office - if i ever make it to work that is! Hope you start improving soon x

[Tigerlily4]

Toni - I know it's probably not of much comfort but I think a lot of forum members have been where you are. Battling lupus is a living hell at times. You need urgent help with meds and if not already taking steroids then you probably need to start. It was at a similar point that I finally had to admit NSAIDs were no longer capable of managing my symptoms. Bearing in mind the stage you're at, the inflammation needs to be hit hard and swiftly. For preference and speed of relief, I'd ask for a shot of depo-medrone - a long-lasting cortico-steroid - it's given into a muscle just above the hip and should have you feeling well within 48 hrs. I've found this drug has far less side effects than oral tabs and should keep you pain free for a couple of months at least. It's only kept by hospitals and only consultants can prescribe it but you can obtain further injections directly from the Sister of your local rheumatology ward if it suits you. Good luck and let us know how you get on. Also a hug x

[rabet]

i know the feeling of pain and it makes you want to sreem when people say oh you lookso well and you feel like s---t