I was "diagnosed" with Lupus in 1997. I'd never heard of it but I did what was advised took the meds etc. iv had various health problems over the years more recently diagnosed with fibromyalgia.
However, today at my rumy appointment the new consultant declares he doesn't think I have Lupus! I just don't know what to make of it. I feel crap, sore all over, exhausted all the time some parts of me are worse than others at different times.
The consultant says the steroids are probably doing more harm than good. I can see that and will be happy to stop them. My worries are what on earth have the last twenty years or so been about? Also what side effects am I to expect during the reduction of steroids?
Anyone out there who can shed some light I will be very grateful.